In this episode of the Friends for Life Podcast, we sit down with Nabil Shaheen, Community Outreach and Communications Manager for the Lucas County Board of Developmental Disabilities. Nabil shares his journey from journalism and marketing into a role that blends his professional passions with meaningful advocacy work. He discusses the rewarding challenges of shaping the board’s messaging, celebrating the achievements of individuals served, and breaking down stereotypes about government agencies and people with disabilities. Nabil also highlights upcoming events, including the quarterly Family Forum and Story Social, while emphasizing the board's legacy of innovation and inclusion. With a commitment to person-centered planning and a focus on evolving communication strategies, Nabil’s work ensures that individuals with developmental disabilities have every opportunity to live life to the fullest. Tune in to hear how storytelling, advocacy, and collaboration drive meaningful change in the community.

In this heartfelt episode of IDD Health Matters, Dr. Craig Escude sits down with Deb Davis, a dedicated nurse and advocate for individuals with intellectual and developmental disabilities (IDD). Deb shares her inspiring journey into the field of IDD support, reflecting on how she found her calling and became a champion for person-centered care. Deb discusses the challenges of working in this field, including her early experiences, the importance of person-centered thinking, and how she overcame feelings of being unprepared to become an expert through relentless learning and certification with the Developmental Disabilities Nurses Association (DDNA). She also highlights the transformative power of listening and observing to truly understand and support individuals, particularly those who communicate in unique ways. Listeners will gain valuable insights into balancing what is important to a person versus what is important for a person, the significance of people-first language, and how small shifts in perspective can foster inclusion and dignity. Deb’s passion, humor, and wisdom make this episode a must-listen for anyone involved in supporting individuals with IDD. Tune in to hear why Deb believes this field attracts “the best people in the world” and how her commitment to this work continues to make a lasting impact—even in retirement.

In this heartfelt episode of the Friends for Life Podcast, Tony Sttuart speaks directly to parents and guardians of individuals with intellectual or developmental disabilities (IDD). Tony highlights the unique challenges caregivers face—balancing long work hours, providing Direct Care at home, and dealing with unreliable resources—all while striving to ensure the best for their loved ones. Tony shares how Friends for Life goes beyond serving individuals with IDD by also supporting their families, addressing caregiver burnout, and fostering meaningful connections within the community. From creating reliable teams of DSPs to promoting understanding and inclusion in society, Friends for Life is committed to improving the lives of individuals with IDD and their caregivers alike. This episode is a must-listen for anyone navigating the joys and struggles of caregiving. Tune in to hear Tony’s compassionate insights and learn how Friends for Life is making a difference for families and caregivers every day.

  In this episode of the Friends for Life Podcast, we explore the challenges facing the direct support professional (DSP) workforce, despite recent increases in hourly wages. Although DSPs saw an average hourly wage of $15.79 nationwide in 2022—a historic first—the high turnover rate of over 40% continues to strain disability service providers, who are struggling to maintain adequate staff. Many providers report having to refuse new referrals or reduce services, highlighting the urgent need for sustainable workforce solutions. Temporary support from the 2021 American Rescue Plan provided essential funding to boost wages, but this relief is set to expire in 2025, raising concerns about long-term stability in the field. Barbara Merrill, CEO of ANCOR, and Armando Contreras, president of United Cerebral Palsy, emphasize the critical need for more consistent support to ensure DSPs receive competitive compensation and people with developmental disabilities can access essential services without prolonged delays. With over half a million individuals still on waiting lists for services, the conversation underscores how years of underinvestment in Medicaid have limited providers’ ability to address the workforce crisis fully, jeopardizing the right of people with disabilities to live independently in their communities.

In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé is joined by Julie Foster Hagan, Louisiana’s State Director of Developmental Disability Services. Recorded live from the NASDDDS conference, Dr. Escudé and Julie discuss the vital work being done to enhance health equity and employment opportunities for individuals with intellectual and developmental disabilities. Julie shares insights into Louisiana’s health equity initiatives, including a strategic focus on data collection and the role of Health Equity Action Teams within the state’s Department of Health. She highlights the impact of the American Rescue Plan Act, enabling projects focused on improving service accessibility and vocational programs. Julie also delves into the importance of integrating people with disabilities into the broader community, emphasizing dignity, respect, and person-centered support. She discusses Louisiana’s innovative programs, such as Operation House Call, which trains medical residents to better understand the unique experiences of individuals with disabilities. The episode wraps up with Julie’s three key insights on advancing support and advocacy in the field, including promoting community awareness, expanding employment opportunities, and honoring individual choice in all aspects of life. Tune in for an inspiring look at transformative initiatives that aim to foster a more inclusive and supportive community for all.

In this episode of the Friends for Life Podcast, our guest shares a heartfelt journey into the world of Direct Support, highlighting the deep connections he’s built with those he cares for and the personal growth he’s experienced. Since starting his career nearly two years ago, he’s not only found joy in supporting others but has also received support himself, especially in pursuing his dream of becoming a radiology technician. He explains how the job has equipped him with resources for schooling and even scholarships, emphasizing the power of community and opportunity in his workplace. Music plays a huge role in his life, both personally and professionally. As a hip-hop and rap artist who explores various genres, he discusses how music serves as a universal language that uplifts spirits and creates meaningful connections—especially for the people he supports. His love for music extends beyond entertainment; he believes music’s unique frequencies bring comfort and healing, especially in caregiving. Through his experience working with individuals with different needs, he’s learned invaluable skills, from patience and resilience to sign language and handling pressure. His advice to anyone entering this field? Approach each day with kindness, patience, and a smile, as even small gestures can profoundly impact those in need. Tune in to hear more about his journey, his music, and his inspiring perspective on making a difference. Follow his music on all streaming platforms under the name LurXSion to experience his creative energy firsthand.

In this episode of the Friends for Life Podcast, we dive into recent research that reveals a striking rise in autism diagnoses across the United States, up by 175% over the last decade. This increase spans all age groups, but some groups are experiencing even higher rates, especially young adults and minority children. The study, published in JAMA Network Open, shows autism prevalence has more than doubled since 2011, underscoring the need for better awareness and support systems. Lead researcher Luke Grosvenor suggests that while universal developmental screenings may account for part of this rise, the diversity in diagnosis rates across age, gender, and ethnicity points to a more complex picture. As the adult autism population continues to grow, the healthcare system faces the challenge of adapting to meet the unique needs of autistic adults, from employment support to mental health resources. In today’s conversation, we explore the implications of these findings and discuss the urgent need for inclusive healthcare solutions that offer lifelong support for autistic individuals. Join us as we take a closer look at the changing landscape of autism diagnoses and what it means for the future of care.

In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Mary Brogan, the state director for developmental disability services in Hawaii. Mary shares her extensive experience managing programs that impact individuals with intellectual and developmental disabilities (IDD), including the oversight of the 1915(c) Medicaid Waiver and neurotrauma services. She highlights the unique challenges of providing dental care and the importance of accessible health services tailored to meet the needs of people with IDD in Hawaii. Mary and Dr. Escudé dive into the critical importance of person-centered practices and how a preventative, systematic approach to healthcare can vastly improve outcomes for individuals with IDD. They discuss the concept of “diagnostic overshadowing,” where medical professionals might attribute symptoms solely to a disability rather than exploring underlying health issues. By encouraging more training and awareness among health practitioners, Mary and Dr. Escudé advocate for a future where IDD patients receive the comprehensive care they deserve. The episode also highlights Mary’s work with the National Association of State Directors of Developmental Disabilities Services (NASDDDS). She explains how the organization provides invaluable federal-level advocacy, technical support, and guidance to help state agencies better serve their communities. Reflecting on the collaboration during the COVID-19 pandemic, Mary shares her belief in the power of partnerships and the importance of balancing dedication to work with personal well-being.

In this episode of the Friends for Life Podcast, Tony Stuart dives into the effects of political ads on the individuals within the IDD community. Drawing on his extensive experience as a Direct Support Professional (DSP), Tony reflects on how divisive messages in the media can impact those with intellectual and developmental disabilities, often causing confusion and frustration. He encourages a focus on humanity over politics, stressing the importance of helping individuals exercise their right to vote while maintaining a respectful, open-minded approach to differing beliefs. Tony shares insights from his time in local government, highlighting the slow pace of change and the dedication required to create meaningful impact in the community. He advocates for finding common ground, listening more, and supporting the people around us without letting political labels define our actions. Join Tony in this candid discussion about unity, empathy, and the real challenges of navigating the political landscape as both a DSP and an advocate for the IDD community. Listen in to explore how we can all be better humans, focusing on understanding and respect above all else.

In this episode of the Friends for Life Podcast, we dive into a timely update for Supplemental Security Income (SSI) recipients who will notice a unique payment schedule in the coming months. With a few quirks in the calendar, SSI beneficiaries will receive two payments in November as December's payment will arrive early due to the first of the month falling on a weekend. This adjustment means no payment will be issued at the start of December, though recipients can still plan on a New Year’s Eve payment for January and other similar shifts in the early part of 2025. Alongside these adjustments, a 2.5% cost-of-living increase will take effect, offering some additional support as inflation rises.  We’ll break down what this means for SSI recipients and discuss how the Social Security Administration’s payment schedule ensures that recipients receive their benefits on time. For those unfamiliar with the differences between SSI and Social Security benefits, we’ll also shed light on the basics. SSI serves as a need-based benefit for older adults, people with disabilities, and those who are blind, regardless of work history, while Social Security benefits are earnings-based. Join us as we simplify these financial shifts and help recipients understand what to expect over the next few months.

In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé is joined by John Raffaele, Director of Educational Services at the National Alliance for Direct Support Professionals (NADSP), for a candid conversation about the evolving role of direct support professionals (DSPs) and their impact on the lives of people with intellectual and developmental disabilities (IDD). Recorded live from the NADSP Annual Conference in Pittsburgh, this episode dives deep into the unique challenges and responsibilities DSPs face and how the industry is working toward elevating their role from entry-level caretakers to respected professionals. John sheds light on NADSP’s mission to redefine DSP training as meaningful development, focusing on professional growth rather than just compliance-based instruction. John also discusses the critical need for a standardized credentialing and certification system for DSPs—something he likens to a medical residency, providing DSPs with hands-on, guided experience rather than simply checking off boxes for required trainings. He emphasizes that DSPs are often left underprepared by traditional entry-level training models, which typically focus on emergency response rather than the nuanced daily support most individuals with IDD require. With over 1.5 million DSPs in the United States, the push for a more formalized development structure and recognition as a legitimate profession is a priority for NADSP, which actively works on advocacy and policy initiatives to achieve this goal.

In this heartfelt episode of the Friends for Life Podcast, we meet a dedicated nursing supervisor who found her calling in home care after a life-changing shift during the pandemic. Transitioning from long-term care in 2020, she discovered a deep passion for home health services, where she quickly rose to a supervisory role. In this position, she provides critical oversight, ensuring patients' medications are managed, doctor’s orders are processed, and care remains seamless. Through her journey, she has found profound fulfillment in advocating for individuals who might otherwise lack a voice, striving to create a supportive, person-centered approach to healthcare. As the episode unfolds, our guest shares the personal connection she has to Friends for Life. Her son, a young man with severe autism, receives 24/7 support from the organization, which has become a lifeline for her family. She describes the immense relief of knowing that Friends for Life not only cares for her son but actively works to support his development, providing the structure and encouragement he needs. Through the organization’s resources and compassionate staff, she has witnessed her son achieve milestones she never imagined possible, bringing an immeasurable sense of hope and security to her family. Listeners will be moved by her stories of the engaging programs at Friends for Life, where individuals enjoy a variety of enriching activities—from outings to apple orchards and pumpkin patches to cooking classes and team-building exercises. These experiences provide clients with valuable life lessons and avenues for social connection. For families like hers, Friends for Life offers more than just care; it creates an environment where individuals can thrive, build friendships, and experience the joy of community. This episode is a testament to the power of compassionate care and the positive, lasting impact it can have on families and individuals alike.

In this episode of the Friends for Life Podcast, Tony Stuart dives into the untapped political power of the disability community, exploring how an estimated 40.2 million eligible voters with disabilities could influence the upcoming presidential election. This episode highlights eye-opening statistics from Rutgers University and examines the growing influence of this often-overlooked electorate, which accounts for a third of all eligible voters when including households with people who have disabilities. Despite their significant numbers, presidential candidates have yet to prioritize issues crucial to this community, raising concerns among disability advocates. Tony Stuart discusses the frustrations of advocates who have received little to no response from the campaigns of former President Donald Trump and Vice President Kamala Harris regarding vital issues like subminimum wage, Supplemental Security Income, and the inclusion of people with disabilities in policymaking. While Harris has proposed expanding Medicare for in-home care, advocates stress the need for both candidates to address the direct support workforce crisis and improve community-based services for people with developmental disabilities. As Election Day approaches, Tony also highlights efforts by organizations like The Arc to ensure that people with disabilities can exercise their right to vote. From hosting voter registration events to providing plain-language resources and taking legal action against voter suppression, advocates are working hard to mobilize the disability vote. Tune in to learn more about the pivotal role this community could play in shaping the future of American politics.

In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé welcomes Valerie Bradley, a pioneer in the intellectual and developmental disabilities (IDD) field. Valerie is the president and co-founder of the Human Services Research Institute (HSRI), an organization dedicated to advancing policies and practices in human services. With over four decades of experience, Valerie has been at the forefront of deinstitutionalization efforts, working to move individuals with IDD from large institutions into more community-based, supportive environments. Her expertise and passion for improving the quality of life for individuals with disabilities have earned her a significant reputation in the field. During the conversation, Valerie reflects on the successes and ongoing challenges of deinstitutionalization, particularly the transition from large institutional settings to smaller community homes. While progress has been made in creating residential and employment supports, Valerie notes the initial missteps of replicating institutional models in smaller settings and the importance of fostering truly integrated community living. She also highlights the impact of the Centers for Medicare and Medicaid Services (CMS) Settings Rule, a landmark policy change that has advanced the rights of individuals with IDD to live more independent and self-directed lives. The discussion delves into broader systemic issues, including the workforce crisis in the caregiving profession and the need for enhanced training and support for Direct Support Professionals (DSPs). Valerie emphasizes the value of self-direction for individuals with IDD, enabling them to take control of their own care and use personalized budgets to hire staff. Her insights provide a long view of the field, tracing its evolution and underscoring the need for continued progress to ensure equitable healthcare and meaningful community inclusion for people with IDD.

In this episode of the Friends for Life Podcast, we sit down with Jasmine Wingate, who shares her incredible journey with the organization. Starting as a Direct Support Professional (DSP), Jasmine reflects on how her path evolved through the encouragement and support of the Friends for Life team. She talks about the growth she's experienced, both personally and professionally, and the genuine connections she's formed with the individuals she serves. Jasmine also highlights the unique culture at Friends for Life, where support and opportunities are abundant, allowing staff to thrive. She discusses the importance of passion in this field, the challenges that come with balancing family and work, and her vision for expanding resources like child care for passionate caregivers. Tune in to hear Jasmine's inspiring story of dedication, advocacy, and why Friends for Life stands apart from other organizations in the industry.

In this episode of the Friends for Life Podcast, we dive into the recent announcement from the Social Security Administration about a 2.5% increase in Social Security and Supplemental Security Income (SSI) benefits for 2025. This cost-of-living adjustment (COLA) is tied to inflation and will provide a much-needed financial boost to millions of Americans, including many individuals with disabilities. We discuss how the new maximum federal SSI benefits will rise to $967 per month for individuals and $1,450 for couples, with some states contributing additional funds. Listeners will also learn about the simplified notifications beneficiaries will receive, providing clear details on their updated payments. Join us as we explore how this adjustment will impact the 7.5 million Americans relying on SSI payments, many of whom are part of the disability community. We'll take a closer look at the significant increases in COLA over the past few years and how these adjustments help people keep up with rising living costs. This episode provides an essential update for anyone receiving benefits or supporting someone who does, with critical information on what to expect in the coming months.

In this episode of IDD Health Matters, host Dr. Craig Escudé is joined by Valerie Chadwick, the Health Advocacy Director at The Arc of Philadelphia. Valerie shares her journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD), highlighting her initial hesitance and eventual drive to become more engaged with this underserved population. Valerie talks about her role at The Arc, where she oversees a program that helps medical and health students interact with individuals with disabilities, fostering understanding and competence in providing inclusive care. Together, they discuss the importance of training healthcare professionals to meet the needs of people with IDD and the groundbreaking partnerships Valerie is building with medical and dental schools in Philadelphia. This episode is filled with powerful insights on the necessity of presuming competence, seeing individuals with disabilities in their full humanity, and making meaningful differences within your sphere of influence. Valerie also opens up about her personal dream of pursuing medical school and continuing her advocacy for people with disabilities throughout her career. Tune in to hear Valerie’s inspiring story and learn more about how healthcare can evolve to be more inclusive for people with disabilities.

In this episode, Tony Stuart and the Friends for Life team are back to touch base on the latest developments. Tony shares his personal journey of growth, both as a leader and as a business owner. He dives deep into the challenges of balancing non-stop movement with results-driven success, emphasizing the importance of dedication and passion in the Direct Support field. The conversation explores the exciting progress of their Adult Day Services (ADS), their expanding team, and how music therapy with Mike Hayes is bringing joy to individuals' lives. Tony also reflects on the evolution of Friends for Life, from humble beginnings to a growing organization with a thriving new office and an unwavering commitment to helping individuals reach their goals. Whether you’re an entrepreneur or in the DSP field, Tony’s insights on building strong teams, embracing specialization, and overcoming setbacks will inspire you to keep pushing forward. Tune in to hear how Friends for Life is making an impact, and why Tony believes that hard work, passion, and staying true to your values are the keys to long-term success. Don’t miss this engaging episode filled with practical advice and powerful reflections on the journey of running a mission-driven business.

In this episode of the Friends for Life Podcast, Tony Stuart dives deep into the crucial role Direct Support Professionals (DSPs) play in enhancing the lives of individuals with intellectual and developmental disabilities (IDD). DSPs are at the heart of empowering individuals with IDD by helping them build skills for greater independence. From learning personal care routines to managing daily tasks, DSPs work side by side with individuals, fostering self-confidence and encouraging them to take charge of their own lives. The conversation also highlights the importance of social inclusion and community engagement. Tony explores how DSPs serve as advocates, ensuring individuals with IDD are included in everyday social activities. Whether it’s participating in events or simply accessing community resources, DSPs help break down barriers that can isolate people with disabilities, fostering a sense of belonging and improving emotional well-being. Tune in to hear more about the emotional and behavioral support that DSPs provide and the positive impact they have on both individuals and families. Tony Stuart shares real-life examples of how DSPs collaborate with families, healthcare providers, and other professionals to create a well-rounded, supportive environment, ensuring individuals with IDD can live fulfilling and dignified lives.

Join Dr. Craig Escudé on IDD Health Matters as he welcomes Dr. Kelly Nye-Lengerman, a seasoned social worker and the Director at the University of New Hampshire's Institute on Disability. In this episode, Dr. Nye-Lengerman delves into her work at the institute, focusing on increasing inclusion and belonging across the lifespan and experiences of disability. With a rich background in both direct support and academic leadership, she offers a unique perspective on the intersection of intellectual disability and mental health, emphasizing the importance of community-based support systems and professional education to improve the quality of life for people with disabilities. Dr. Nye-Lengerman shares the challenges and strategies involved in enhancing health equity through her involvement with the START National Training Institute, which aims to advance practices that support individuals and families in the most inclusive and equitable ways possible. This conference, enriched by contributions from people with lived experiences and community partners, showcases the significant progress being made in the field. The conversation also touches on the common misinterpretations of behavioral symptoms as mental health issues, highlighting the necessity of recognizing underlying medical conditions which can be treated to prevent unnecessary suffering. The episode concludes with a powerful discussion on the role of direct support professionals and the critical need for proper training and recognition of this workforce to achieve real inclusion and participation for people with intellectual and developmental disabilities. Dr. Nye-Lengerman's passionate advocacy for equitable health care and her belief in the transformative power of inclusive higher education shine through, offering valuable insights and inspiring listeners to consider the deep impact of educational and support systems in enhancing the lives of people with disabilities.

In this engaging episode of the Friends for Life Podcast, Tony Stuart addresses a compelling question: Are you too old to be a Direct Support Professional (DSP)? Tony dismantles the common misconception that age disqualifies individuals from contributing effectively in the disability support field, especially within intellectual and developmental disability (IDD) communities. He passionately argues that older adults can bring invaluable experience and a rich array of skills to roles that don't necessarily demand physical labor, such as in Adult Day Services or programs emphasizing arts and culinary skills. Tony encourages listeners to rethink their capabilities and consider how their unique experiences and passions can make a significant impact in the lives of those with IDD. As the discussion unfolds, Tony highlights the increasing demand for support within the IDD community, noting rising autism and intellectual delay diagnoses. He emphasizes the importance of recognizing and utilizing one's skills to aid in fostering independence among individuals with IDD. Tony issues a challenge to listeners, urging those between the ages of 25 to 55 to engage more actively with their communities by volunteering a few days as a DSP. This involvement, he suggests, could range from hands-on assistance to strategic roles in hiring and training within local agencies, highlighting the diverse ways one can contribute. Wrapping up the episode, Tony extends a warm invitation to join the Friends for Life community, reinforcing that no one is ever too old to make a difference. He reminds listeners that Friends for Life Residential Care is actively hiring and always open to new members who are passionate about enhancing the quality of life for individuals with developmental disabilities. Whether you're looking to make a big or small impact, Tony encourages taking that step towards becoming part of a community that values every individual's contribution, proving that your ability is indeed stronger than any disability. Join Tony next time for more insightful discussions on the Friends for Life Podcast.

In this episode of the Friends for Life Podcast, Tony Stuart dives into the modern challenges faced by professionals working in the field of intellectual and developmental disabilities (IDDs). One of the biggest hurdles is the severe shortage of qualified personnel, particularly direct support professionals (DSPs), who provide essential care and support. The conversation sheds light on how high turnover rates, low wages, and burnout are affecting the quality of care and limiting access to vital services for individuals with IDDs. Tony also highlights the gaps in training that leave many DSPs underprepared to meet the complex needs of those with IDDs. From medical care to behavioral support, there is a growing need for specialized training that is often inaccessible due to funding and geographic limitations. The episode also tackles the healthcare disparities individuals with IDDs face, and how miscommunication and a lack of specialized services can lead to ineffective or even harmful care. Finally, the discussion explores the impact of societal stigma and the ongoing challenges of integrating individuals with IDDs into communities, education, and employment. Tony emphasizes the need for continued advocacy, better funding, and increased awareness to ensure that those with IDDs are given the opportunities and dignity they deserve. Tune in to learn more about the systemic issues facing the IDD field and how professionals are working to overcome these barriers.

In this episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Michele Cantanzerite, Chief Medical Officer at Achievable Health, a federally qualified health center in Culver City, California. Together, they dive into Michele’s journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD). From a chance start to now leading a healthcare facility dedicated to improving the lives of individuals with IDD, Michelle reflects on the challenges and rewards of working in this specialized field, where communication and humility play crucial roles in delivering patient-centered care. Michele highlights the unique mission of Achievable Health, emphasizing its integrated care approach, including medical services, behavioral health, and therapy. The clinic, although small, is growing rapidly and has recently received a significant grant from the Mackenzie Scott Foundation to expand its services. Michele and Dr. Escudé discuss the importance of creating an accessible, welcoming environment for people with IDD, as well as the collaborative work with California's regional centers to ensure comprehensive care and support for patients with disabilities. Throughout their conversation, Michele and Dr. Escudé explore key issues in healthcare for people with IDD, including the systemic discrimination patients often face and the lack of proper training among healthcare providers. They also delve into the broader need for healthcare professionals to approach care with humility and a willingness to learn, ensuring that individuals with IDD receive the compassionate, competent care they deserve. This insightful episode sheds light on the ongoing efforts to improve healthcare equity for people with IDD.

In this episode, Tony Stuart dives deep into the process of finding the right agency or independent provider for individuals and families navigating care decisions. Drawing from his extensive experience and charismatic personality, Tony offers valuable insights on what to look for when choosing a provider. From meeting the staff to understanding their experience, pay rates, and benefits, he emphasizes the importance of asking the right questions. Tony highlights that the initial meeting should be followed by a second interview to get a fuller picture of the team that will be supporting you or your loved one. Tony also discusses the often-overlooked differences between agency providers and independent providers, helping listeners assess which option might suit their needs. He encourages listeners to ask about staffing levels, healthcare benefits, and longevity within the organization to get a clear sense of what to expect. His personal experience in the field, along with his passion for personalized care, offers a unique perspective on how to build trust and connection with those who will be working in your home during vulnerable moments. The episode wraps up with a reflection on the origins of Friends for Life, a company Tony founded with his Uncle Larry in mind. Tony shares how his personal experiences inspired him to create an organization that emphasizes friendship and family in care settings. He encourages listeners to reach out with questions or concerns, offering his advice and guidance for those navigating the complex process of choosing a provider. Whether you're searching for care or are a provider looking to connect, this episode is packed with practical tips and thoughtful advice.

Welcome to this enlightening episode of the Friends for Life Podcast, where we delve into the intricate world of healthcare for adults with intellectual and developmental disabilities (IDDs). In this episode, we explore the severe, chronic nature of IDDs, which can manifest before the age of 22 and impact individuals throughout their lives. Our discussion highlights the types of IDDs, such as cerebral palsy, epilepsy, Down syndrome, and fetal alcohol syndrome, emphasizing the importance of early diagnosis and adaptive behavior in managing these conditions effectively. The conversation shifts to the significant health disparities that adults with IDDs face, including challenges in accessing care, the quality of healthcare provided, and the financial constraints due to reliance on public funding. We address how these factors contribute to poorer health outcomes and discuss systemic changes needed to improve healthcare delivery for this vulnerable population. Our experts discuss the role of family medicine in bridging these gaps through community-focused initiatives and direct care services in group homes. Rounding off the episode, we focus on the urgent need for enhanced medical education and training in handling IDDs. The gap in healthcare providers’ readiness to treat individuals with IDDs calls for a restructured approach in medical education and residency programs. Join us as we advocate for a multifaceted strategy to healthcare that not only improves outcomes for adults with IDDs but also creates a more inclusive and effective healthcare system for all. Tune in to gain a deeper understanding and learn how we can all contribute to a better healthcare environment.

In this episode of IDD Health Matters, Dr. Craig Escude is joined by Dr. Toni Benton, a professor and medical director at the University of New Mexico's Family Medicine department. Together, they dive into the complexities of healthcare for individuals with intellectual and developmental disabilities. Dr. Benton shares insights about her work with the Transdisciplinary Evaluation and Support (TES) Clinic, a program that's been providing innovative, community-based care for over 30 years. Dr. Benton explains how her team, which includes medical professionals, social workers, and various specialists, provides comprehensive evaluations for individuals across New Mexico. The TES Clinic addresses complex medical, behavioral, and psychosocial challenges, working closely with families and care teams to find effective solutions. Through thoughtful case studies and examples, Dr. Benton emphasizes the importance of collaborative, interdisciplinary healthcare, highlighting how their evaluations have transformed lives. Listeners will also hear about the clinic’s capacity-building efforts, where Dr. Benton’s team teaches and supports local clinicians to ensure long-term care improvements. Dr. Benton offers practical tips for professionals working with individuals who cannot communicate verbally, stressing the importance of listening with more than just ears and recognizing subtle signs during physical exams. Tune in for a deep dive into this unique model of care and discover how collaboration and dedication can enhance health outcomes for people with IDD.

In this episode of the Friends for Life Podcast, Tony Stuart delves into a significant issue faced by Direct Support Professionals (DSPs): resignations. Tony addresses the common tendency for DSPs and even those in executive and administrative positions to leave a job when faced with challenges. While understanding that some positions may not be the right fit, he encourages individuals to ask themselves important questions before making the decision to resign. Are they leaving a situation that is truly unchangeable, or are they missing an opportunity to be the positive change within their environment? Tony stresses that taking the time to evaluate their role, skills, and impact can lead to professional growth and even potential promotions. Tony emphasizes the importance of giving time to adjust, especially for those newer to the field. He shares that discomfort is part of every career journey and that success often comes from pushing through difficult moments. For those working in the DSP field, especially in environments that are unpredictable or stressful, he advises sticking it out for a while longer, honing skills, and improving their surroundings. He also acknowledges that some disabilities can be hard to adjust to, but emphasizes the importance of taking time to learn and grow within the field rather than leaving prematurely. Furthermore, Tony offers practical advice for those contemplating resignation, encouraging them to communicate with their administrators and seek solutions to improve their situation before making a final decision. He highlights the importance of leaving a job respectfully, providing adequate notice, and ensuring that clients are not negatively impacted by the departure. Whether it’s due to personal or professional reasons, Tony’s message is clear: plan ahead, communicate effectively, and always aim to make a positive difference.

In this enlightening episode of the Friends for Life Podcast, we delve into the transformative concept of neurodiversity in the workplace. Discover how leading companies like Microsoft and SAP are not just accommodating but actively seeking out neurodiverse individuals to enhance their workforce. Through initiatives like Microsoft's "Neurodiversity Hiring Program" and SAP's "Autism at Work," these pioneers are setting a precedent for the entire corporate world, showcasing the untapped potential and unique abilities that neurodiverse employees bring to the table. We explore the myriad benefits that a neurodiverse workforce offers to companies. From boosting innovation and creativity to reflecting a broader range of customer needs, the inclusion of individuals with neurological differences such as autism and ADHD is proving to be a strategic advantage. Listen in as we discuss real-world case studies and firsthand accounts from companies that have witnessed significant improvements in problem-solving capabilities and operational effectiveness through their diverse teams. Join us as we discuss the future of workplace inclusion and the ongoing efforts to embrace neurodiversity. This episode not only highlights the challenges faced in integrating neurodiverse individuals into mainstream roles but also provides insights into the solutions companies are implementing, like tailored onboarding programs and flexible work policies. Tune in to understand how these pioneering initiatives are not only changing lives but are also reshaping the future of employment in our increasingly diverse society.

In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Ann Hardiman, Chief Innovation Officer at the New York Alliance for Inclusion and Innovation. Ann shares her journey into the field of intellectual and developmental disabilities (IDD), which was shaped by personal experiences with mental health in her family. The discussion begins with Ann's involvement during the early days of deinstitutionalization, when people with IDD were transitioning from institutional settings to community-based living. Ann reflects on the significant improvements in quality of life that resulted from this movement, as well as the challenges that persist, particularly in the realm of healthcare access and social inclusion. The conversation delves into the critical need for improved healthcare services for people with IDD, with Ann highlighting the disparities in medical care that individuals face in both institutional and community settings. She discusses issues like inadequate dental care, polypharmacy, and the lack of training among healthcare providers to address the unique needs of this population. Ann and Dr. Escudé explore how these challenges can be overcome through better training for clinicians and more person-centered approaches to healthcare, ensuring that people with IDD receive the care they deserve. Ann also shares exciting initiatives underway at the New York Alliance, including a new executive leadership development program aimed at building future leaders in the field of disability services. She emphasizes the importance of fostering a strong, value-driven network of professionals who are committed to inclusion, diversity, and innovation. Throughout the episode, Ann underscores the power of relationships and advocacy, encouraging listeners to share their stories and continue pushing for greater acceptance and equity for people with disabilities.

In this candid episode of the Friends for Life Podcast, Tony Stuart dives into a conversation that might challenge your perspective on the field of Direct Support Professionals (DSP). Tony addresses the common complaint that "there’s no money in this field" and offers a different take—there is money, but it’s tied to skill development and personal growth. He reflects on his own journey and the realization that expanding your skill set is essential for professional advancement. Tony also tackles the sacrifices DSPs often make, like working long hours and prioritizing material goals over time with loved ones. With his usual no-nonsense approach, Tony encourages listeners to make the most of their downtime, invest in learning, and push themselves out of their comfort zones. Whether you’re a DSP or someone in a leadership position, this episode is packed with insights about growth, time management, and challenging the notion of staying stagnant in your career. Tune in to rethink what’s possible in this field and get inspired to take your career to the next level.

In this episode of the Friends for Life Podcast, we explore a groundbreaking development in the field of autism diagnosis—artificial intelligence (AI). As families across the globe seek faster and more accurate diagnoses for their children, the traditional process can be slow and overwhelming. We dive into the latest research on how AI is being harnessed to transform this process, potentially cutting down the wait time for a diagnosis and helping children access the critical early intervention services they need. This episode offers a glimpse into the future of healthcare, where technology and human expertise come together to enhance lives. We discuss the incredible potential of AI to standardize and accelerate the diagnostic process across different healthcare settings. Imagine a world where no matter where you live, you have access to the same high standard of care. AI is making this a reality by analyzing vast amounts of data to identify subtle markers of autism that might be missed in traditional assessments. However, we also address the ethical considerations and challenges that come with integrating AI into such a sensitive area of healthcare. From ensuring data privacy to avoiding over-reliance on technology, these are important issues that must be navigated carefully. Join us as we delve into how AI is not just a tool for the future but a promising ally in the ongoing effort to provide timely, equitable, and accurate autism diagnoses. This episode is a must-listen for anyone interested in the intersection of technology and healthcare, and for families who are looking for hope in the often daunting journey toward understanding and supporting children with autism. Tune in to learn how innovation is paving the way for better outcomes and brighter futures.

Dr. Carl Tyler is a leading figure in the field of healthcare for individuals with intellectual and developmental disabilities (IDD). He is the current president of the American Academy of Developmental Medicine and Dentistry (AADMD), an organization dedicated to improving healthcare for people with IDD through education, advocacy, and policy efforts. Dr. Tyler is also a professor of family medicine at the Cleveland Clinic, where he plays a key role in training healthcare providers, including residents, on how to care for individuals with IDD. His career began during the deinstitutionalization movement in Ohio, and over time, he became a strong advocate for improving healthcare systems and training physicians to meet the specific needs of this population. Dr. Tyler's work includes research, scholarship, and contributions to medical literature, and he has helped integrate specialized care for individuals with IDD into mainstream medical training programs. In addition to his clinical and educational work, Dr. Tyler has authored several key resources, including the book Intellectual Disability at Your Fingertips, which provides practical guidance for healthcare providers working with this population.

In this episode of the Friends for Life Podcast, Tony Stuart explores the vital role that DSPs (Direct Support Professionals) play in maintaining strong relationships with physicians to ensure individuals with disabilities receive the best medical care possible. He emphasizes that DSPs are often the bridge between the individual and their physician, responsible for observing any changes in behavior, tracking health conditions, and relaying essential information that the individual may not be able to express on their own. This episode highlights how DSPs can play a crucial role in helping physicians make more informed decisions, especially when the individuals they care for have communication or cognitive challenges. Tony addresses a common issue within agencies: not all staff have the same level of dedication or understanding when it comes to medical care. He stresses the need for agencies to create specialized roles, such as a medical liaison, to manage and streamline medical appointments, medication, and communication with physicians. By doing so, agencies can localize medical care responsibilities, ensuring that someone with expertise and focus is keeping the individual's health a priority. Tony gives a shout-out to Hannah, their medical liaison at Friends for Life, for being a phenomenal asset to their team and urges other agencies to consider implementing a similar position. The episode wraps up with practical advice for DSPs, including the importance of being aware of every aspect of an individual's life that could affect their health. By closely monitoring their diet, activities, and any pain or discomfort, DSPs can provide valuable insights to physicians. Tony also shares a personal anecdote to illustrate how difficult it can be to describe medical symptoms, making it even more critical for DSPs to understand the individual's unique communication abilities. This episode is packed with insights on improving medical care through better communication and attention to detail, encouraging agencies to take proactive steps to ensure the health and well-being of those they serve.

In this episode of the Friends for Life Podcast, we dive into a critical issue that is affecting millions of Americans with disabilities: the nearly $1 billion in federal funds for disability services that have gone unspent. These funds, allocated under the American Rescue Plan Act, were meant to enhance home and community-based services during the COVID-19 pandemic—a time when the need for such services has been more urgent than ever. Yet, due to bureaucratic delays and workforce shortages, this money remains untouched, leaving countless individuals and families struggling without the support they desperately need. We explore the real-world impact of this unspent funding on individuals with disabilities and their families. From the loss of essential services that allow people to live independently to the overwhelming burden placed on family caregivers, the consequences of this funding failure are profound and far-reaching. The episode sheds light on how the lack of direct support professionals and administrative hurdles are compounding the challenges, putting the quality of life for many at risk. Join us as we discuss the long-term implications of this issue and what needs to be done to ensure that these critical funds are utilized to their fullest potential. This episode is a must-listen for anyone invested in disability rights, social justice, and the ongoing fight to secure necessary services for all. Don't miss this important conversation about accountability, advocacy, and the urgent need for action in the disability services sector.

Welcome to another insightful episode of the IDD Health Matters Podcast with Dr. Craig Escude. In this episode, Dr. Escude is joined by two remarkable guests, Nanette Wrobel and Jessica Jacobs from Tarrytown Expocare Pharmacy, a leading provider of pharmacy services for individuals with intellectual and developmental disabilities (IDD). Nanette, a seasoned pharmacist with nearly 40 years of experience, and Jessica, a pharmacy technician with a strong background in mental health and IDD, share their unique journeys into the IDD field. They discuss the critical role that specialized pharmacy services play in supporting individuals with IDD, emphasizing the importance of tailored medication management and the need for continuous education for healthcare providers. Throughout the conversation, Dr. Escude and his guests delve into the nuances of medication management for people with IDD, including the challenges of recognizing and addressing non-verbal communication of symptoms and side effects. They also explore the broader implications of health equity in this field, highlighting the progress made and the ongoing need for collaboration among healthcare professionals to improve the quality of care. Tune in to hear inspiring stories, practical advice, and a deep dive into the collaborative efforts required to enhance the lives of individuals with IDD. Whether you're a healthcare professional, caregiver, or advocate, this episode is packed with valuable insights that can help you make a positive impact in the IDD community. Don't miss the "Three in Three" segment, where Jessica and Nanette offer actionable tips for improving health and wellness for people with IDD, emphasizing the power of education, volunteerism, and an open-minded approach to learning. Join us for this enlightening discussion that reinforces the importance of compassionate care and continuous learning in the IDD field.

In this episode of the Friends for Life Podcast, we tackle one of the most challenging aspects of working in the Intellectual and Developmental Disabilities (IDD) field—coping with the death of those we care for and support. Whether it’s the passing of a long-time client, colleague, or friend, the emotional toll can be overwhelming, and finding ways to process grief in a healthy manner is essential. Our hosts share personal stories and experiences, offering a compassionate perspective on how to navigate these difficult moments while continuing to provide the best possible care for others. The conversation dives into the unique bond that often forms between caregivers and those with IDD, making the loss particularly profound. We discuss the importance of acknowledging grief, both personally and within the workplace, and explore strategies for supporting one another through such times. From professional counseling services to informal support networks, this episode highlights the resources available to help individuals and teams cope with the emotional challenges of loss. In addition, we explore the significance of honoring the lives of those who have passed and the positive impact they’ve had on the community. By remembering their contributions and celebrating their achievements, we ensure that their legacy lives on. This episode is a heartfelt exploration of grief and resilience in the IDD field, offering listeners valuable insights and practical advice for managing loss while maintaining a sense of purpose and connection.

In this episode of the Friends for Life Podcast, we dive into the critical discussions happening in Congress as the deadline for the Autism CARES Act reauthorization looms. The Autism CARES Act, a vital piece of legislation that has been the backbone of federal support for autism since 2006, is set to expire on September 30, 2024. With both the Senate and House proposing their versions of the bill, the future of autism research, services, and support hangs in the balance. We explore the key differences between the proposed bills and what they mean for the autism community. From increasing funding to introducing new provisions that focus on aging and speech limitations, these changes could significantly impact the lives of individuals with autism. The episode also discusses the importance of ensuring that federal investment aligns with the community's needs, particularly for those requiring 24-hour care and young adults transitioning to adulthood. As the deadline approaches, the urgency for action becomes more apparent. Join us as we unpack the potential implications of the Autism CARES Act's renewal and what it could mean for millions of people across the country. Will Congress come together to secure the future of this critical legislation, or will the autism community face a gap in essential support? Listen in to find out.

Join Dr. Craig Escude in this insightful episode of IDD Health Matters, recorded live from the ANCOR conference in Chicago. In this episode, Dr. Escude welcomes Catherine Thibedeau, who shares her remarkable journey from entering the field of supports and services for people with intellectual and developmental disabilities (IDD) by necessity, to becoming the executive director of Independence Advocates of Maine. Catherine discusses the array of services her agency provides and highlights her dual role in influencing policy and professional development through state and national provider networks. Catherine's story illustrates the career opportunities within the IDD service field, emphasizing the potential for rapid advancement and professional growth. Additionally, she dives into the innovative health initiatives her organization is pioneering, such as the use of telemedicine to improve accessibility and quality of care for people with IDD, especially in rural settings. Listeners will gain valuable insights into the importance of inclusive hiring practices and the transformative impact of thoughtful, person-centered caregiving. Whether you’re a provider, a caregiver, or someone interested in the field of IDD services, this episode is packed with inspiring stories and practical advice for fostering health equity and empowering individuals with disabilities. Tune in to learn how engaging with and supporting the IDD community can enrich lives and enhance the quality of care across the board.

In this episode of the Friends for Life Podcast, Tony Stuart delves into the complexities of communication, a topic that everyone seems to value but often struggles to execute effectively. Tony begins by highlighting a common paradox—people often claim they prioritize communication, yet their actions, like ignoring calls or leaving voicemails unchecked, tell a different story. He reflects on his own experiences and the challenges he's observed, even among professionals in multimillion-dollar companies, where communication is consistently cited as an area needing improvement. This episode isn't just about the act of communicating but also about how our messages are received and interpreted by others. Tony goes on to explore the various forms that communication can take, from emails and text messages to phone calls and face-to-face interactions. He emphasizes the importance of understanding the different ways people perceive communication, noting that what might seem like a simple text to one person can come across as aggressive to another. He also discusses the nuances of verbal communication, where tone, body language, and enthusiasm can drastically alter the message being conveyed. For those in the direct support professional (DSP) field or any professional setting, understanding these subtleties is crucial. Tony shares his approach to communication, which involves using multiple channels to ensure the message is received and understood, depending on its importance. Finally, Tony addresses the significance of adaptability and the role of apologies in effective communication. He encourages listeners to be mindful of how they communicate and to be willing to adjust their style to better connect with others. In a world where everyone is constantly changing, Tony reminds us that it's okay to apologize if we've unintentionally offended someone. He also offers practical advice for improving communication, such as clearing out full voicemails and actually listening to the messages people leave. As the episode wraps up, Tony leaves listeners with a simple yet powerful challenge: to communicate something positive to someone today. This episode is a must-listen for anyone looking to enhance their communication skills and foster better relationships in both personal and professional settings.     4o

In this episode of the Friends for Life Podcast, we dive into the transformative impact of the Individuals with Disabilities Education Act (IDEA), a landmark piece of legislation that has reshaped the educational landscape for children with disabilities. We’ll explore the historical context that led to the creation of IDEA, tracing its roots back to the civil rights movement and the push for equal educational opportunities for all. From its origins as the Education for All Handicapped Children Act in 1975 to its evolution into IDEA in 1990, this law has been a beacon of hope for millions of students and their families. We’ll break down the key provisions of IDEA, including the right to Free and Appropriate Public Education (FAPE) and the requirement for education in the Least Restrictive Environment (LRE). You’ll learn how the Individualized Education Program (IEP) serves as a personalized roadmap for each student’s success, ensuring that their unique needs are met with tailored support. We’ll also discuss the procedural safeguards that protect students and their families, and the critical role that parents and students play in shaping their educational journey. Join us as we reflect on the profound impact IDEA has had on promoting inclusion, independence, and academic success for students with disabilities. We’ll also touch on the challenges that remain, from funding issues to disparities in implementation, and consider what the future might hold for this vital legislation. Whether you’re a parent, educator, or advocate, this episode offers valuable insights into the ongoing fight for educational equity and the rights of all students to reach their full potential. Learn More Here: https://friendsforliferc.com/ 

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Art Dykstra, a veteran in the field of intellectual and developmental disabilities (IDD). Art, who currently serves as the director of the Trinity Foundation and has previously led Trinity Services as CEO, shares his inspiring journey from an unexpected start in the IDD field to becoming a pivotal figure in providing support and resources for individuals with disabilities across Illinois. Art's story begins with a simple job posting that led him to work with a young man with autism, a transformative experience that steered him from philosophy to psychology and ultimately into a lifelong commitment to the IDD community. Throughout the conversation, Art reflects on the importance of making a difference in people's lives and how his early experiences shaped his career. His insights into the challenges and rewards of working in this field provide a deep understanding of the complexities and the profound impact one can have on individuals and their families. Dr. Escudé and Art discuss the vital role of interdisciplinary collaboration in supporting individuals with IDD, emphasizing the need for integrating mental and physical health care. They also explore the concepts of happiness and joy, the importance of self-awareness, and the value of serving others. Art’s dedication to improving the lives of those with IDD is a testament to the power of compassion and commitment, offering valuable lessons for anyone interested in making a difference in this field. Tune in for a heartfelt and enlightening conversation that underscores the profound impact of dedicated service in the lives of others.     4o

In this episode of the Friends for Life Podcast, Tony Stewart dives into the essential yet often overlooked skill of teaching within the caregiving community. Teaching isn't confined to classrooms; it's a responsibility shared by everyone in the field, regardless of their role. Tony highlights how, at Friends for Life, teaching is a core value that empowers every team member to be both a leader and a mentor. He emphasizes that the ability to teach and lead is not just for those in managerial positions but is crucial for anyone dedicated to improving the lives of others. Tony challenges the mindset that teaching is someone else’s job, urging listeners to embrace the role of a teacher in their everyday interactions. By sharing personal insights and experiences, he underscores the importance of developing teaching skills as a way to enhance not only individual growth but also the overall success of the organization. Tony draws a powerful parallel between teaching and other skills, reminding us that just like riding a bike, teaching requires practice and dedication. Listeners will leave this episode with a renewed perspective on the value of teaching in their professional lives. Tony's message is clear: teaching is not just about imparting knowledge but about fostering a culture of learning, growth, and excellence. Whether you’re a seasoned professional or new to the field, this episode offers valuable takeaways on how to cultivate the skill of teaching to elevate both yourself and those around you. Tune in to discover how you can contribute to a culture of continuous learning at Friends for Life.

In this episode of the Friends for Life Podcast, we dive deep into the often-overlooked history of how individuals with intellectual and developmental disabilities (IDD) were treated before the modern era. From ancient civilizations that saw these individuals through the lens of superstition and fear, to the dark periods of the Middle Ages where they were often subjected to inhumane treatments, we explore the societal attitudes that shaped their lives. The episode sheds light on how these perceptions were influenced by religious beliefs, ignorance, and a lack of medical understanding, leading to severe marginalization and mistreatment. As we move through history, the episode examines the shift during the Enlightenment and early modern period, where there were initial stirrings of change but still widespread mistreatment. Despite the emergence of more compassionate discussions and a growing emphasis on human dignity, the reality for most people with IDD remained bleak, with many confined to asylums and institutions. The episode also touches on the 19th century's rise of institutionalization and the troubling influence of eugenics, which further stigmatized and isolated individuals with disabilities. Join us as we unravel this important and sobering history, highlighting the long journey toward recognition, dignity, and rights for people with intellectual and developmental disabilities. This episode serves as a reminder of how far we've come and the importance of continuing to advocate for inclusion and respect for all individuals, regardless of their abilities.

In this insightful episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Karyn Harvey, a passionate advocate for trauma-informed care in the field of intellectual and developmental disabilities (IDD). Recorded live from the ANCOR conference, Karyn shares her deep understanding of the behavioral challenges often faced by individuals with IDD, revealing how these behaviors are frequently symptoms of unrecognized trauma, such as post-traumatic stress disorder (PTSD). Karyn discusses the critical need for access to therapeutic support for those with IDD, emphasizing the profound impact of trauma on their mental health. She delves into the three essential components of trauma-informed support: emotional safety, connection through meaningful relationships, and empowerment. Through her years of experience, Karyn highlights the vital role that direct support professionals (DSPs) play in the healing and growth of individuals with IDD, stressing that the most significant transformations occur when DSPs are compassionate, understanding, and supportive. Tune in to hear Karyn’s inspiring stories, learn about her latest book "Trauma and Healing," and discover practical strategies for creating environments where individuals with IDD can thrive. This episode is a must-listen for anyone interested in health equity, trauma-informed care, and making a lasting difference in the lives of those with intellectual and developmental disabilities. About Karyn: Karyn Harvey, PhD, is a well-respected psychologist and expert in the field of intellectual and developmental disabilities (IDD), particularly known for her work on trauma-informed care. She has spent over three decades working with individuals with IDD, focusing on mental health, behavioral interventions, and therapeutic support. Dr. Harvey is a passionate advocate for recognizing and addressing the trauma experienced by people with IDD, which is often overlooked or misunderstood. She is the author of several books, including "Trauma-Informed Behavioral Interventions" and "Trauma and Healing," which provide valuable resources for caregivers, direct support professionals, and others working in the IDD field. Her work emphasizes the importance of creating safe, connected, and empowering environments for individuals with IDD to help them heal and thrive. Dr. Harvey is also a frequent speaker at conferences and a sought-after expert in the area of mental health and trauma for people with intellectual and developmental disabilities. 

In this episode of the Friends for Life Podcast, host Tony Stewart dives deep into the impact of habits on both our personal and professional lives, particularly in the context of caregiving. Drawing from his own experiences, Tony discusses how our moods and habits can influence not only our work but also the well-being of the clients we serve. He shares a heartfelt story about his own struggles with smoking and the profound effect it had on his life, especially after losing his mother to COPD. Tony also tackles the challenges faced by Direct Support Professionals (DSPs) who work in environments where both they and their clients may have unhealthy habits, such as smoking. He offers practical advice on how to replace these habits with healthier alternatives, emphasizing the importance of leading by example. Whether you're a DSP, an administrator, or anyone looking to make positive changes in your life, this episode provides valuable insights and tips for creating a healthier, more positive environment for both yourself and those you care for. Tune in to learn more about the power of habits and how small changes can lead to big transformations.

In this episode of the Friends for Life Podcast, we delve into the complex world of developmental disabilities. Join us as we explore the various factors contributing to these conditions, from genetic abnormalities like Down syndrome, caused by an extra chromosome 21, to environmental influences such as prenatal exposure to harmful substances, infections, and poor maternal nutrition. We'll discuss the impact of birth complications, including oxygen deprivation, premature birth, and low birth weight, on a child's development. Additionally, we'll examine postnatal factors like injuries, malnutrition, and environmental toxins that can lead to developmental disabilities. Tune in to gain a deeper understanding of these challenges and learn about the importance of early intervention and ongoing support for affected individuals and their families.

In this episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Meera Gandhi, the dedicated Clinic Director at Kramer Davis Health Clinic in Nashville. Meera shares her inspiring journey, from coaching Special Olympics athletes in California to becoming a passionate advocate and leader in healthcare for people with intellectual and developmental disabilities (IDD). She discusses how her early experiences shaped her career and led her to Kramer Davis Health, where she now plays a pivotal role in providing comprehensive care. Dr. Escude and Meera delve into the unique, holistic approach of Kramer Davis Health, emphasizing integrated care that brings together medical, dental, therapeutic, and psychological services under one roof. Meera explains how this model is transforming medicine, especially for IDD patients who often face significant challenges in traditional healthcare settings. They highlight the importance of transdisciplinary care and the benefits of having all specialists collaborate closely to address the complex needs of their patients. Meera also shares her insights on the critical need for better training and awareness among clinicians regarding IDD healthcare. She discusses the initiatives at Kramer Davis Health to educate and train future healthcare providers, ensuring that more clinicians are equipped to deliver high-quality care to this underserved population. Tune in to hear how Meera and her team are making a significant impact on the lives of IDD patients and their families, and learn about the future goals of Kramer Davis Health in revolutionizing care for people with intellectual and developmental disabilities.

In this episode of the Friends for Life Podcast, host Tony Stewart tackles a challenging and often uncomfortable question: "Who's lying here—the client, the Direct Support Professional (DSP), or the agency?" Tony dives into the complex dynamics that agency providers face when trying to discern the truth in various scenarios, from minor household issues to significant major unusual incidents (MUIs). Tony explores how different perspectives and motivations can influence the perceptions of each party involved. Whether it's a DSP fearing job loss, a client with a history of making allegations, or an agency under scrutiny from regulatory bodies, understanding the underlying objectives of each person is crucial. Tony emphasizes the importance of teamwork, open communication, and adhering to established protocols to navigate these situations effectively. He shares his belief that coming together as a team and holding meetings is the key to resolving conflicts and ensuring the best outcomes for everyone involved. Tune in to gain insights on how to handle disputes, foster collaboration, and build trust within your team. Whether you're an agency provider, a DSP, or someone interested in the field of caregiving, this episode offers valuable perspectives on addressing and resolving conflicts with integrity and empathy.