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Tony Stuart
The Friends for Life Podcast dives deep into the topic of Developmental Disabilities, and also discusses topics such as hard work, motivation and entrepreneurship for those who are disabled.
Total 107 episodes
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Ep 199: Effective Communication and Trust-Building Strategies in the IDD Field

Ep 199: Effective Communication and Trust-Building Strategies in the IDD Field

In this insightful episode of Friends for Life, host Tony Stewart tackles the critical topic of relationships within the social work field. Tony explores the dynamics between social workers, clients, executive staff, and Direct Support Professionals (DSPs), shedding light on how these relationships form a vital circle of trust that is sometimes lacking. He emphasizes the need for fluid and open communication among all parties to ensure everyone understands each other's perspectives and contributions. Tony delves into the specific challenges faced in Ohio, where Service and Support Administrators (SSAs) interact with agency providers and DSPs. He discusses the importance of speaking up when something feels morally wrong and the responsibility each individual has to address issues constructively. Tony candidly addresses the difficulty of handling criticism and how it can lead to high turnover rates if not managed properly. Listeners will gain valuable insights into how to foster better relationships by talking to colleagues, getting to know them, and accepting their unique work styles. Tony underscores that understanding and respect are crucial for building a supportive and effective work environment. He also provides practical tips on how agency providers can accept and implement constructive criticism to benefit clients and improve service delivery. Join Tony as he navigates the complexities of these essential relationships, offering thoughtful advice and actionable strategies for making meaningful improvements. This episode is a must-listen for anyone involved in social work, from frontline DSPs to executive staff, as it highlights the importance of collaboration, empathy, and mutual respect in achieving the best outcomes for clients. Tune in to Friends for Life and discover how stronger relationships can transform the social work landscape for the better.
06:1827/07/2024
Ep 198: The Role of Direct Support Professionals in Intellectual and Developmental Disabilities Care

Ep 198: The Role of Direct Support Professionals in Intellectual and Developmental Disabilities Care

In this enlightening episode of the Friends for Life Podcast, we dive deep into the world of Direct Support Professionals (DSPs) and their indispensable role in supporting individuals with intellectual and developmental disabilities (IDD). Join us as we explore the diverse responsibilities of DSPs, from personal care and health management to social engagement and skill development. We'll discuss how DSPs foster independence, advocate for inclusion, and enhance the quality of life for those they serve. Our conversation will also cover practical tips for DSPs to provide the best care possible. Learn about the importance of empathy, effective communication, continuous learning, and a person-centered approach. Discover how team collaboration and self-care can help DSPs excel in their roles while maintaining their well-being. Whether you're a seasoned DSP, new to the field, or simply interested in learning more about the critical work these professionals do, this episode offers valuable insights and inspiration. Tune in to understand how DSPs are making a difference and creating a more inclusive and compassionate society.
05:1324/07/2024
Innovative Approaches to IDD Health with Nurse Natalie Symons from Milestone HCQU West

Innovative Approaches to IDD Health with Nurse Natalie Symons from Milestone HCQU West

Join Dr. Craig Escude in this insightful episode of IDD Health Matters, where we explore health, wellness, and health equity for individuals with intellectual and developmental disabilities (IDD). Our special guest, Natalie Symons, a dedicated registered nurse and the director of the Milestone Health Care Quality Unit (HCQU) in Western Pennsylvania, shares her extensive experience and innovative approaches to supporting individuals with IDD. In this episode, Natalie discusses her role in providing training and technical assistance to agencies across nine counties in Pennsylvania. She highlights the critical work her team does, including offering over 250 medical and behavioral training topics, providing free technical assistance, and developing a new DSP app to support direct support professionals and family members. Natalie also shares their innovative use of virtual reality for training, which enhances learning retention and provides a safe environment for making mistakes. Additionally, Natalie recounts her journey into the field of IDD health care, emphasizing the importance of listening to and advocating for individuals with IDD. She shares valuable advice on increasing activity, paying attention to subtle health cues, and the rewarding nature of working with this community. Tune in to learn about the innovative tools and practices that are making a difference in the lives of individuals with IDD, and be inspired by Natalie’s passion and dedication to this vital field. Three Key Takeaways: Increase activity levels for individuals with IDD to improve overall health. Listen attentively and observe carefully to understand and address health needs. Embrace the rewarding nature of working with individuals with IDD and advocate tirelessly on their behalf. For more information on Milestone HCQU, visit Milestone PA and explore the DSP app and other resources. Listen now on your favorite podcast platform!
27:0922/07/2024
Ep 197: Workplace Injury Disclosure in the IDD Field

Ep 197: Workplace Injury Disclosure in the IDD Field

Hey everyone, it's Tony here with another episode of the Friends for Life Podcast. Today, we're diving into a critical topic: injuries in the workplace. It's a complex issue, especially in our field, where there are a lot of moving parts. In this episode, I emphasize the importance of disclosing any injuries either at the time of employment or immediately if the injury happens at work. From both a compassionate and a business owner's perspective, understanding how workers' compensation works is crucial. Non-disclosure can lead to significant financial strain on the company, affecting budget allocations that could otherwise benefit staff, particularly those at the lower levels such as DSPs and middle management. Moreover, not disclosing an injury can put you in harm's way. If you provide this information upfront, it helps ensure you are placed in roles that won't exacerbate your condition. Concealing an injury can lead to perceptions of favoritism and discrimination, which we strictly do not tolerate at Friends for Life. We hire individuals for their uniqueness and dedication to caring for all, not to pick and choose which disabilities they want to work with. I hope this episode clarifies the importance of transparency regarding workplace injuries and helps everyone understand the broader implications. Thanks for tuning in!
06:5520/07/2024
Ep 196: Life Before the ADA

Ep 196: Life Before the ADA

In this episode, we delve into the significant challenges people with disabilities faced before the landmark Americans with Disabilities Act (ADA) of 1990. Prior to the ADA, public spaces were often inaccessible, lacking ramps, elevators, and other essential accommodations. This made it incredibly difficult for individuals with mobility impairments to navigate and participate in everyday activities, severely limiting their independence and quality of life. Education was another area fraught with barriers. Many schools were ill-equipped to support inclusive education, leading to students with disabilities being placed in separate, less rigorous educational tracks or excluded from the education system entirely. Without necessary resources such as sign language interpreters and assistive technologies, these students struggled to learn and thrive academically, impacting their future opportunities. Employment discrimination was rampant, with many employers reluctant to hire individuals with disabilities due to misconceptions about their abilities and the presumed cost of accommodations. Those who did find work often faced an unsupportive environment, lacking reasonable adjustments needed for success and well-being. This led to higher unemployment rates and economic disadvantage among people with disabilities, further marginalizing this community. Social stigma and a lack of understanding about disabilities compounded these challenges, resulting in social isolation and discrimination. Healthcare was also a critical area of concern, with inaccessible medical facilities and inadequate care due to untrained providers. The ADA's passage was a turning point, addressing these issues and establishing civil rights protections to promote inclusion and equal opportunities. Join us for an insightful discussion on life before the ADA and the importance of continued advocacy for disability rights.
06:0417/07/2024
Unlocking Health Equity: Expert Insights with Nurse Consultant Terry Broda

Unlocking Health Equity: Expert Insights with Nurse Consultant Terry Broda

Welcome to another episode of the IDD Health Matters Podcast with Dr. Craig Escudé. In this episode, Dr. Escudé is joined by Terry Broda, a seasoned nurse consultant with over 30 years of experience in the field of intellectual and developmental disabilities (IDD). Terry shares her unique journey into the field, which began unexpectedly and evolved into a lifelong passion. Together, they delve into critical topics such as health equity, the importance of understanding medical issues like constipation and seizures, and the vital role of proper diagnosis in improving the quality of life for individuals with IDD. Terry's extensive background in psychiatry, neurology, and her work with First Nations communities provide rich insights and compelling stories that highlight the nuances of healthcare for people with IDD. Listen in as they discuss the necessity of educating clinicians and supporters, the impact of medical comorbidities on behavior, and the importance of recognizing and treating underlying health issues. Terry also shares actionable steps that listeners can take to support this field, emphasizing the need for greater exposure, acceptance, and resource accessibility. This episode is a must-listen for anyone involved in or interested in the health and wellness of individuals with intellectual and developmental disabilities. Tune in to gain valuable knowledge and inspiration from Terry Broda's extensive experience and dedication to this important work. Join us for an enlightening conversation on the IDD Health Matters Podcast!
16:5115/07/2024
Ep 195: Navigating Pet Ownership in Developmental Disability Support: Tips for DSPs, SSAs, and Care Providers

Ep 195: Navigating Pet Ownership in Developmental Disability Support: Tips for DSPs, SSAs, and Care Providers

Welcome to the Friends for Life Podcast, where we delve into the nuanced world of providing support for individuals with developmental disabilities. In this episode, we discuss the complexities surrounding pet ownership among our clients. Pets can offer comfort and companionship, but they also bring challenges in care, training, and company liability. Join us as we share practical tips for Direct Support Professionals (DSPs), Service and Support Administrators (SSAs), and agency providers. We emphasize the importance of efficient team meetings, understanding the unique needs of both individuals and their pets, and navigating scenarios where allergies, past traumas, or cultural beliefs come into play. We also explore alternative pet options and stress the importance of safety for both caregivers and clients. Learn more about our mission to empower and improve the quality of life for individuals with disabilities through services like Adult Day Support and Home Health Care. We are dedicated to the motto "my ability is stronger than my disability" and invite passionate individuals to explore career opportunities with us. For more information and career opportunities, visit friendsforliferc.com.
08:0113/07/2024
Empowering People with Disabilities: Insights & Innovations: Elizabeth Martin of Living Resources

Empowering People with Disabilities: Insights & Innovations: Elizabeth Martin of Living Resources

In this episode of IDD Health Matters, Dr. Craig Escude is joined by Elizabeth Martin, the CEO of Living Resources, recorded live at the New York Alliance for Inclusion and Innovation annual conference. Elizabeth shares her experiences and insights since joining Living Resources in September 2020, navigating the challenges of the pandemic and her transition from working with physical disabilities to intellectual and developmental disabilities (IDD). Elizabeth details the wide array of services offered by Living Resources, an organization with nearly 50 years of history in empowering individuals with disabilities. She highlights their residential programs, day programs, community habilitation, employment services, self-direction, and innovative college programs in partnership with several institutions. A significant portion of the conversation focuses on the pressing issue of workforce shortages in the field and how Living Resources strives to provide a fulfilling career for its staff despite financial challenges. Elizabeth emphasizes the importance of health and wellness, discussing their comprehensive nursing and clinical services, including Dialectical Behavioral Therapy (DBT). Elizabeth also shares the organization's efforts to foster greater independence and control for individuals with disabilities through a citizenship approach, person-centered support, and assistive technology. She concludes the episode with three pieces of advice for listeners: question the status quo, navigate regulations creatively, and maintain hope and optimism in the face of challenges. Join Dr. Craig Escude and Elizabeth Martin as they delve into the intricacies of providing high-quality services and support for people with intellectual and developmental disabilities, sharing valuable insights and strategies for overcoming common obstacles in the field. Key Takeaways: Insights into the diverse services provided by Living Resources. Discussion on workforce shortages and the importance of creating fulfilling career opportunities. Emphasis on comprehensive health and wellness support, including nursing and DBT. Innovative approaches to enhancing independence and control for individuals with disabilities. Three pieces of advice for professionals in the field: question established practices, creatively navigate regulations, and maintain hope and optimism. Tune in to gain a deeper understanding of the challenges and innovations in the field of disability services from an experienced leader dedicated to making a difference.     4o
18:5208/07/2024
Ep 194: Top 7 Activities to Decompress and Recharge Your Mind as a DSP

Ep 194: Top 7 Activities to Decompress and Recharge Your Mind as a DSP

  Hey everyone, it's Tony again with Friends for Life. One of the most challenging aspects of being deeply immersed in our field is the feeling of never truly being "off." Even during personal time with friends and family, it can feel like you're stuck in work mode, which can be mentally exhausting. To help combat this, I have a few activities that I enjoy and that might be beneficial for you too. First, I love taking long walks. If I have the time, I'll go for a two-mile walk to enjoy nature. I wasn't always a believer in the benefits of walking, but now I find it incredibly refreshing and grounding. Secondly, I enjoy reading, especially audiobooks since I'm often on the road. Listening to something unrelated to work can be a great mental break. Spending quality family time is crucial. We often say we'll have family time, but it ends up being more about us than them. Truly engaging in activities your family enjoys can be rejuvenating. Swimming is another favorite of mine. The connection with water is incredibly relaxing and soothing for the soul. Exercise is also a great way to recharge. It doesn't have to be intense—just a 15-20 minute session of simple exercises like squats, push-ups, or a short run can boost your mood through endorphins. Lastly, if you're looking for something less active, try a 10-minute meditation. There are plenty of guided breathing exercises available online that can leave you feeling decompressed and stress-free. These are a few methods I use to reset and recharge, and I hope they can help you too.
07:4006/07/2024
Unlocking Disability Rights: Insights on Workplace Accommodations with Federal Employment Lawyer Eric Pines

Unlocking Disability Rights: Insights on Workplace Accommodations with Federal Employment Lawyer Eric Pines

Welcome to another episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude. In this episode, Dr. Escude talks with Eric Pines, Esq., a nationally recognized federal employment lawyer, mediator, and attorney business coach. Eric discusses his work in advocating for reasonable accommodations for federal employees, particularly veterans, and those with disabilities. Eric Pines provides insights into his legal practice, emphasizing the importance of understanding and asserting one's rights under laws such as the Americans with Disabilities Act (ADA) and the Rehabilitation Act. He shares real-world examples, including helping veterans with PTSD secure work-from-home arrangements and assisting a federal employee with epilepsy by having the government build a special workspace. Eric's credentials are impressive. He represents federal employees and acts as in-house counsel for over fifty thousand federal employees through his work as a federal employee labor union representative. A former federal employee himself, Eric began his federal employment law career as in-house counsel for AFGE Local 1923, located at the Social Security Administration’s headquarters and known as the largest federal union local in the world. He presently serves as AFGE 1923’s Chief Counsel, as well as in-house counsel for all FEMA bargaining unit employees and numerous Department of Defense and Veteran Affairs unions. The conversation highlights the critical role of accommodations in the workplace and the challenges faced by individuals with disabilities in securing these accommodations. Eric underscores the significance of being well-informed about one’s legal rights and the resources available to assist in obtaining necessary accommodations. For those seeking more information, Eric recommends the Job Accommodation Network (JAN) at askjan.org, which offers creative solutions and comprehensive guides on accommodations. He also points to his website, Pines Federal (pinesfederal.com), which features a wealth of resources, blogs, and case studies on disability accommodations. Eric’s passion extends to his own podcast, "Disability Inclusion and Accommodation in the Workplace," where he discusses innovative accommodation solutions and shares stories of individuals who have thrived despite their disabilities. This podcast is available on major platforms like Spotify and Apple Podcasts. As the episode concludes, Eric encourages listeners to assert their rights and pursue accommodations confidently, reminding them that the law is often on their side when it comes to ensuring equitable treatment in the workplace. This episode is a valuable resource for anyone interested in disability rights and workplace accommodations, offering practical advice and inspiring stories of advocacy and resilience.
24:2901/07/2024
Ep 193: Maximizing Teamwork in Developmental Disabilities Care

Ep 193: Maximizing Teamwork in Developmental Disabilities Care

Hey everybody, it's Tony again. I've been observing a lot of issues with teamwork, or rather the lack of it, lately. In our current generation, there's such a strong emphasis on individual accomplishments that we often overlook the immense benefits of working as a team. I'd love to see more collaboration in the DD (Developmental Disabilities) space. Paul and I have spent a considerable amount of time connecting various aspects of social media and production for numerous shows. In this process, we've collaborated with multiple agencies and noticed that some are hesitant to work together due to negative competition. Don't get me wrong, I love competition and won't hesitate to show I'm better at something, but I'll also help others reach my level because I see competition as motivation. That's the mindset I want to foster in our group at Friends for Life. Often, there's a misconception among staff that one person must outshine another by making them look bad. I don't support this approach. Instead, we empower each staff member to become a leader in their domain, which in turn benefits the individuals we support. Instead of trying to outwork someone negatively, let's do it positively. There's a saying I like: to build the biggest building, you can either tear down others or build yours bigger. I prefer the latter. So, today, I encourage you to work kindly with others and learn about their struggles. Understanding and collaboration impress more than working alone. Friends for Life Residential Care specializes in supporting individuals with developmental disabilities. We offer services like Adult Day Support and Home Healthcare, emphasizing empowerment and quality of life, living by the motto, "My ability is stronger than my disability." We're currently hiring passionate individuals. Learn more and explore career opportunities at friendsforliferc.com.
07:0929/06/2024
Revolutionizing IDD Healthcare: Dr. Matt Holder on Transformative Patient-Centered Care

Revolutionizing IDD Healthcare: Dr. Matt Holder on Transformative Patient-Centered Care

Welcome to "IDD Health Matters," the podcast dedicated to exploring health, wellness, and health equity for individuals with intellectual and developmental disabilities. Hosted by Dr. Craig Escude, each episode delves into the unique challenges and innovative solutions within this specialized field of healthcare. In this episode, Dr. Escude takes a road trip to Hermitage, just outside of Nashville, to visit Dr. Matt Holder, the driving force behind Kramer Davis Health. Dr. Holder shares his journey from the Lee Specialty Clinic in Louisville, Kentucky, to establishing Kramer Davis Health, a pioneering transdisciplinary outpatient healthcare center dedicated to adults with intellectual and developmental disabilities. They discuss the comprehensive services offered, including medical, dental, physical therapy, speech therapy, psychiatric care, and behavioral analysis, all coordinated under one roof for optimal patient care. Dr. Holder emphasizes the importance of personalized, patient-centered care, recounts inspiring patient stories, and shares insights into the complexities of healthcare systems and insurance challenges. This episode provides a deep dive into the innovative approaches that are transforming healthcare for individuals with IDD. Join Dr. Escude and Dr. Holder as they discuss the mission, challenges, and successes of Kramer Davis Health, and explore the future of inclusive healthcare. Tune in for an inspiring and informative conversation that highlights the importance of compassion, creativity, and advocacy in improving health outcomes for people with intellectual and developmental disabilities.
42:4124/06/2024
Ep 192: Navigating Major Unusual Incidents (MUIs): Expert Tips and Strategies for Developmental Disability Care Providers

Ep 192: Navigating Major Unusual Incidents (MUIs): Expert Tips and Strategies for Developmental Disability Care Providers

Welcome back to "Friends for Life," the podcast where we dive deep into the realities and nuances of working in the field of developmental disabilities. I'm your host, Tony, and today we're tackling the often daunting topic of Major Unusual Incidents (MUIs). From personal experience and countless conversations with professionals, I know that facing an MUI can be stressful, but it doesn't have to be a nightmare. In this episode, we'll discuss practical strategies for staying calm during an MUI, the importance of meticulous documentation, and why it's crucial to stick to the facts. We'll also explore common mistakes people make during these situations and how to avoid them. Remember, MUIs are about documenting facts to prevent future issues, not about assigning blame. For those new to this topic, I encourage you to check out our previous episodes on MUIs and reach out to your local departments for more information. As always, we are here to support you with valuable insights and resources to help you navigate your career in developmental disabilities. Sponsored by: Friends for Life Residential Care: Specializing in support for individuals with developmental disabilities, offering Adult Day support and Home Health Care. IntellectAbility: Providing health risk screening tools, e-learning courses, and person-centered training. Assured Health Services: Helping individuals reach their goals through residential care and ADS services. Reliable Drug & Alcohol Testing Clinic: Offering pre-employment and occupational testing services. THS Remote Supports: Improving independent living through dynamic and personalized services. Tune in, stay informed, and remember: Your ability is stronger than your disability. For more information and career opportunities, visit friendsforliferc.com. About Friends for Life: Friends for Life Residential Care specializes in empowering individuals with developmental disabilities by providing top-notch support services that enhance quality of life. We live by the motto "My ability is stronger than my disability." We're currently hiring passionate individuals who want to make a difference. Learn more at friendsforliferc.com.
07:2722/06/2024
An Insightful Discussion with Ernest "Ernie" McNutt on Health Equity for IDD

An Insightful Discussion with Ernest "Ernie" McNutt on Health Equity for IDD

Welcome to another insightful episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude. In this episode, we delve into the critical aspects of health, wellness, and equity for individuals with intellectual and developmental disabilities (IDD). Our special guest, Ernest "Ernie" McNutt, joins us from the New York Alliance for Inclusion and Innovation, where he plays a pivotal role in care coordination for people with IDD. Ernie shares his journey into the field, which began during his college days working in a group home. He discusses the evolution of care coordination organizations (CCOs) in New York State, established in 2018, which aim to provide holistic care management. These organizations serve as independent advocates for individuals with IDD, helping them access necessary services and integrate into their communities. Ernie elaborates on the role of care managers in developing personalized life plans that address the unique needs and desires of each individual. He emphasizes the importance of viewing people with disabilities not just through the lens of their disabilities but as individuals with unique differences and abilities. Through stories of successful interventions and personal growth, Ernie highlights the transformative impact of dedicated care and support. Dr. Escude and Ernie also discuss the broader implications of this work, including the importance of volunteering and fostering a more inclusive society. They encourage listeners to see beyond disabilities and recognize the rich contributions that individuals with IDD can make to their communities. Tune in to learn more about the vital work being done to support people with IDD and the ongoing efforts to promote health equity and inclusion. Whether you're a professional in the field, a family member, or simply interested in making a difference, this episode offers valuable insights and inspiration.
20:3717/06/2024
Ep 191: Understanding Common Sense in Developmental Disabilities: Essential Training Tips

Ep 191: Understanding Common Sense in Developmental Disabilities: Essential Training Tips

Welcome to the Friends for Life Podcast! Hosted by Tony and Paul, this podcast delves into the ongoing lives and issues faced by individuals with developmental disabilities, aiming to spark positive change in the field—all while having a lot of fun. In this episode, Tony emphasizes an important lesson: common sense is not common. He urges listeners to abandon the ideology that everyone inherently knows the same things. This episode highlights the importance of documented standards and procedures in the field of developmental disabilities, explaining that without them, management and supervision would be unnecessary. Tony illustrates this by discussing how personal differences in cleaning and cooking standards demonstrate the need for consistent, documented guidelines. He further advises that when training new hires, one should not assume they know everything. It's crucial to provide thorough teaching, showing, and helping until the new tasks become habitual. Tony mentions that creating a new habit typically takes about three weeks, though this can vary from person to person. He concludes by encouraging listeners to embrace better practices and to give feedback on the podcast's content. Tune in for this insightful discussion and let us know what topics you'd like to hear about next time!
06:3315/06/2024
Empowering Neurodiversity: Dr. Harold Reitman Discusses Health Equity

Empowering Neurodiversity: Dr. Harold Reitman Discusses Health Equity

Join Dr. Craig Escude on this enlightening episode of "ID Health Matters," where we delve into health, wellness, and health equity for individuals with intellectual and developmental disabilities. In today's episode, we are thrilled to welcome Dr. Harold Reitman, affectionately known as "Hackie," joining us from Fort Lauderdale, Florida. Dr. Reitman shares his inspiring journey from a young aspiring doctor in Jersey City to becoming a renowned orthopedic surgeon and an advocate for neurodiversity. Listen as Hackie recounts his unique path through medical school, his unexpected venture into the world of boxing as a Golden Gloves champion, and his profound personal experiences that led him to work in the field of neurodiversity. Discover the origins and mission of DifferentBrains.org, a non-profit organization dedicated to fostering understanding and inclusion for people with neurological differences. Dr. Reitman's story is not just about overcoming the odds; it's a passionate call for empathy, understanding, and the celebration of individual strengths in a diverse world.
35:3510/06/2024
Ep 190: Effective Management Tips for IDD Support

Ep 190: Effective Management Tips for IDD Support

Join Tony and Paul as they bring you inspiring stories and important discussions about the lives and issues faced by people with developmental disabilities. At Friends for Life Residential Care, we specialize in providing top-notch support services, including Adult Day Support and Home Health Care, all aimed at enhancing empowerment and quality of life. We live by the motto, "My ability is stronger than my disability." We are actively hiring individuals passionate about making a difference. Discover more about our services and career opportunities at friendsforliferc.com.   Management Tips and Best Practices In today's episode, we delve into the challenges of middle management and share essential management etiquette tips: Confidentiality: Respect and maintain the confidentiality of sensitive information. Appearance: Dress appropriately for different occasions while adhering to company policies. Handling Frustration: Manage frustration constructively, remembering the primary goal of serving individuals.
07:4108/06/2024
Improving Health Equity for Individuals with IDD: Insights from Lorene Reagan

Improving Health Equity for Individuals with IDD: Insights from Lorene Reagan

Welcome to the IDD Health Matters Podcast with Dr. Craig Escude, where we explore health, wellness, and health equity for individuals with intellectual and developmental disabilities (IDD). In this episode, Dr. Escude hosts Lorene Reagan, a seasoned professional with 40 years of experience in IDD nursing. Lorene shares her journey into the field, which began by chance in 1984 when she took a job at a school for children with IDD. She describes her diverse career, from clinical nursing and working in group homes to serving as the Nurse Coordinator for the New Hampshire Department of Health and Human Services. Her extensive experience includes administrative roles, working with the New Hampshire Board of Nursing, and consulting for a National Medicaid firm. Currently, she contributes her vast knowledge and expertise at IntellectAbility. The conversation delves into the significant challenges in achieving health equity for people with IDD. Lorene and Dr. Escude discuss issues such as the lack of preventive care, untreated chronic conditions, and systemic barriers that contribute to these health disparities. Despite these challenges, they also highlight positive changes, such as the shift from institutional to community-based support systems and the increased focus on health equity by national and international organizations. Lorene emphasizes the importance of education and the evolving role of developmental disabilities nurses. She encourages nurses to get involved with professional organizations like the Developmental Disabilities Nurses Association (DDNA) and to stay informed about the latest clinical practice guidelines. In a segment called "Three in Three," Lorene offers three actionable suggestions for improving health care for people with IDD: Get to know individuals with IDD and their families to better advocate for their healthcare needs. Become involved in interdisciplinary teams and support the broader community of IDD healthcare professionals. Stay updated with the most current clinical practice guidelines to provide the best care possible. Join Dr. Escude and Lorene Reagan for an insightful discussion filled with valuable advice, personal anecdotes, and a shared passion for improving health equity for individuals with intellectual and developmental disabilities.  
19:3103/06/2024
189: How to Excel in a Job Interview for a DSP Position in the IDD Field

189: How to Excel in a Job Interview for a DSP Position in the IDD Field

Discover essential tips and strategies to perform exceptionally well in a job interview for a Direct Support Professional (DSP) role in the Intellectual and Developmental Disabilities (IDD) field. This video covers key areas such as understanding the responsibilities of a DSP, showcasing relevant skills and experiences, preparing for common interview questions, and demonstrating your commitment to providing high-quality care. Learn how to effectively communicate your passion for helping individuals with IDD and stand out as a top candidate.
06:5803/06/2024
Revolutionizing Adaptive Health and Wellness: TruFit's Innovative Solutions for Disabilities with Adam White

Revolutionizing Adaptive Health and Wellness: TruFit's Innovative Solutions for Disabilities with Adam White

In this episode of IDD Health Matters, host Dr. Craig Escude is joined by Adam White from TruFit, a company dedicated to creating adaptive health and wellness solutions for individuals with intellectual, developmental, and physical disabilities. Adam discusses the innovative TruFit app, which customizes exercise programs and activities based on individual needs, offering a holistic approach to health that includes physical fitness, emotional wellness, life skills training, and nutrition. The conversation covers TruFit's pilot programs in schools and collaborations with nonprofit organizations, assisted living homes, and therapy providers, aiming to enhance the overall well-being of people with disabilities. Adam shares insights on the importance of proactive health measures and the need for advocacy and recognition for the disabled community. Tune in to learn more about TruFit’s mission to make health and wellness accessible and effective for everyone.
22:1727/05/2024
Ep 188: Practical Strategies for Supporting Individuals with Developmental Disabilities

Ep 188: Practical Strategies for Supporting Individuals with Developmental Disabilities

Welcome to the Friends for Life Podcast, where hosts Tony and Paul bring you insightful discussions on the lives and issues faced by individuals with developmental disabilities. Our mission is to spark positive change, foster a supportive community, and have a lot of fun along the way. About Us At Friends for Life Residential Care, we specialize in empowering individuals with developmental disabilities through comprehensive services like Adult Day Support and Home Health Care. We live by the motto, "My ability is stronger than my disability," and strive to enhance the quality of life for those we support. We are always looking for passionate and dedicated individuals to join our team. If you are interested in making a difference, explore career opportunities at friendsforliferc.com. Episode Highlights In this episode, we dive deep into the everyday challenges and strategies involved in supporting individuals with developmental disabilities to make healthier life choices without infringing on their rights. We discuss practical approaches to encourage better decisions, such as: Diabetic-Friendly Options: How to provide healthier alternatives for individuals with diabetes while respecting their choices. For example, offering diabetic-friendly cookies instead of regular ones and making these options more appealing. Positive Reinforcement: Techniques for promoting healthier behaviors by creating positive incentives. This might include offering rewards for making healthier choices or adding enjoyable activities that promote well-being. Balancing Rights and Health: Understanding the delicate balance between respecting an individual's rights and guiding them towards healthier habits. We share experiences and tips on how to navigate these situations effectively. Being a Direct Support Professional (DSP) or an agency provider can be challenging. Our discussion provides valuable insights and practical advice to help you support individuals in making positive lifestyle choices while maintaining their autonomy and rights. Join the Conversation Join us on the Friends for Life Podcast to learn, grow, and support each other in making a difference in the lives of individuals with developmental disabilities. Whether you are a professional in the field, a family member, or someone interested in learning more, our podcast offers valuable perspectives and actionable tips to help you on this journey. If you find our content helpful, please reach out and let us know. We are here to support you and provide more resources and information to enhance the quality of care for individuals with developmental disabilities.
07:4225/05/2024
Expanding Horizons in Autism Support: A Conversation with Patrick Paul

Expanding Horizons in Autism Support: A Conversation with Patrick Paul

In this engaging episode of IDD Health Matters, Dr. Craig Escude welcomes Patrick Paul, a dynamic leader in the field of intellectual and developmental disabilities, at the New York Alliance for Inclusion and Innovation conference. Patrick, the seasoned Executive Director/CEO of Anderson Center for Autism, and shares his comprehensive journey from being a CPA conducting audits for the organization to leading it. He delves into the challenges and successes faced by those with autism, particularly around accessing healthcare and the risk of diagnostic overshadowing—a critical issue highlighted by a recent Joint Commission alert. Throughout the discussion, Patrick outlines the extensive services his organization offers, from residential schooling for children to international training programs that attract professionals worldwide. He emphasizes the importance of integrated care and the need for medical professionals to understand and swiftly respond to the health needs of non-verbal individuals. Closing the episode, Patrick shares inspiring insights and experiences, emphasizing the potential within crisis to drive innovation and change in healthcare for individuals with developmental disabilities.
20:2820/05/2024
Ep 187: Empowering Lives: The Vital Role of Assistive Technology for Developmental Disabilities

Ep 187: Empowering Lives: The Vital Role of Assistive Technology for Developmental Disabilities

Welcome to our podcast, where we explore the vital role of assistive technology in supporting individuals with developmental disabilities. Technology enhances the quality of life for those facing communication challenges, with remote supports and communication devices serving as lifelines. These tools empower users by providing them with the means to express themselves, engage with the world, and receive care that respects their autonomy and individuality. For individuals who cannot speak, communication devices—often referred to as Augmentative and Alternative Communication (AAC) devices—are essential. Ranging from simple picture boards to sophisticated speech-generating devices (SGDs) that can be operated through touch, eye movement, or even brain waves, these tools provide a voice to those without one. This technology enables individuals to express their needs, desires, and emotions, which is fundamental to human dignity and autonomy. Remote supports involve the use of technology to monitor and assist individuals with developmental disabilities without the need for a caregiver to be physically present at all times. This includes sensors and alarms that notify caregivers of potential issues, video conferencing tools for remote check-ins, and smart home technologies that allow individuals to control their environment. These supports promote independence and ensure safety, reducing the need for constant direct supervision and allowing individuals more personal space and privacy. For care providers, these technologies are transformative. They allow for more efficient allocation of resources, ensuring that direct support professionals can focus on individuals who need in-person care while remotely assisting others. By leveraging technology, caregivers can enhance their responsiveness and flexibility, adapting to the needs of the individual in real-time. Technology also plays a pivotal role in social inclusion. For many individuals with developmental disabilities, traditional forms of social interaction and community participation are challenging. Communication devices open new avenues for interaction and socialization that were previously inaccessible. Social media platforms, online communities, and virtual environments can all be navigated using these assistive devices, allowing individuals to forge connections and participate in community life more fully. Despite their benefits, the implementation of these technologies is not without challenges. Accessibility, cost, and training are significant barriers. Ensuring that devices are user-friendly and tailored to meet individual needs requires both time and expertise. Furthermore, there is an ongoing need for funding to support the widespread adoption of these technologies, particularly in low-income areas. The importance of technology in the field of developmental disabilities cannot be overstated. Assistive devices and remote supports are not just about providing care—they are about enabling independence, dignity, and participation in a broader social world. As technology advances, the potential to improve the lives of individuals with developmental disabilities grows. It is imperative for policymakers, providers, and communities to invest in these technologies and ensure they are accessible to all who need them. Through such commitment, the promise of full and enriching lives for individuals with developmental disabilities can become a closer reality. Join us as we delve into these topics and more on our podcast.
06:1718/05/2024
Enhancing Dental Care for Individuals with IDD: Elizabeth Thompson & Meelin D. Chin Kit-Wells

Enhancing Dental Care for Individuals with IDD: Elizabeth Thompson & Meelin D. Chin Kit-Wells

In this engaging episode of "IDD Health Matters," Dr. Craig Escude, broadcasting from the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado, delves into the innovative integration of dental and occupational therapy for patients with intellectual and developmental disabilities. His guests, Dr. Meelin D. Chin Kit-Wells DDS, M.Ed., a pediatric dentist, and Elizabeth Thompson, an occupational therapist, share their pioneering approach to specialized dental care. Dr. Wells highlights the unique setup of their practice, which incorporates a full-time occupational therapist to enhance patient care. This collaboration has proven essential in understanding and meeting the unique needs of their patients through pre-visit interviews, optimized communication strategies, and tailored patient support during dental procedures. Elizabeth Thompson discusses her role in preparing patients for visits, which includes gathering detailed personal and medical histories and designing bespoke interventions to improve patient comfort and cooperation during dental treatments. These strategies include desensitization techniques to familiarize patients with dental procedures and environments gradually, aiming to reduce anxiety and improve overall care outcomes. The episode also covers the importance of education for healthcare providers, emphasizing compassion and understanding in treating patients with disabilities. Dr. Wells and Ms. Thompson share valuable insights into creating more inclusive and effective healthcare environments, reflecting on the broader implications of their work in fostering health equity. Dr. Escude's podcast offers a profound look into the advancements in healthcare for individuals with developmental challenges, spotlighting the dedication and innovation driving change within the field. 
16:5813/05/2024
Ep 186: Exploring the Impact of Adult Day Services on the IDD Community

Ep 186: Exploring the Impact of Adult Day Services on the IDD Community

Tune into the "Friends for Life Podcast," hosted by Tony and Paul, for insightful discussions on the lives and challenges of people with intellectual and developmental disabilities (IDD). This podcast shines a light on important issues within the IDD community and explores innovative solutions to improve quality of life and promote inclusivity. Each episode features in-depth conversations about Adult Day Services (ADS), crucial programs that provide meaningful daily activities and social interactions for adults with IDD. ADS play a vital role in preventing isolation, enhancing skills, and offering vocational opportunities, thereby supporting individuals to live more independently and engage actively in their communities. Whether you're a professional in the IDD field, a caregiver, or an advocate for disability rights, the "Friends for Life Podcast" offers a rich blend of expert opinions, real-life stories, and strategic discussions aimed at fostering empowerment and systemic change in the field of developmental disabilities. Join us to stay informed and inspired as we navigate the complexities and celebrate the achievements of the IDD community.      
13:3511/05/2024
The Burden and Impact of Tardive Dyskinesia (TD) in People with IDD: Dr. Sharon Cahoon-Metzger

The Burden and Impact of Tardive Dyskinesia (TD) in People with IDD: Dr. Sharon Cahoon-Metzger

Welcome to another enlightening episode of IDD Health Matters, where we delve into crucial health topics for individuals with intellectual and developmental disabilities. In today's episode, sponsored by Neurocrine Biosciences, we shed light on the often overlooked issue of Tardive Dyskinesia (TD) in people with IDD. Join Dr. Craig Escude as he welcomes Dr. Sharon Cahoon-Metzger, an expert in the field, to explore the burden and impact of TD. Dr. Cahoon-Metzger expertly guides us through the complexities of TD, describing it as a condition characterized by abnormal involuntary movements resulting from prolonged use of certain medications. She emphasizes the importance of early recognition and diagnosis, highlighting the significant risk factors associated with TD, including age, medication potency, and anti-cholinergic treatment. Throughout the episode, Dr. Cahoon-Metzger paints a vivid picture of the diverse manifestations of TD, from orobuccal movements to limb dyskinesia, underscoring the challenges in diagnosis and management. She shares compelling case studies that illustrate the profound impact of TD on individuals' daily lives, from social isolation to diminished independence. Dr. Escude and Dr. Cahoon-Metzger stress the crucial role of interdisciplinary collaboration in identifying and addressing TD symptoms. They emphasize the need for heightened awareness among caregivers and healthcare professionals, advocating for regular monitoring and early intervention. Listeners are encouraged to leverage available resources, including educational materials provided by Neurocrine Biosciences, to enhance their understanding of TD and improve patient outcomes. As the episode draws to a close, Dr. Escude and Dr. Cahoon-Metzger urge listeners to join the collective effort in mitigating the long-term impacts of TD, ultimately striving to enhance the quality of life for individuals with IDD. Tune in to gain invaluable insights into TD and empower yourself to make a difference in the lives of those we support.
20:0006/05/2024
Ep 185: Empowering Independence: The Role of Technology in Developmental Disabilities

Ep 185: Empowering Independence: The Role of Technology in Developmental Disabilities

In this episode of the Friends for Life Podcast, hosts Tony and Paul delve into the transformative role of technology in the lives of individuals with developmental disabilities. Joined by expert guests, they explore how technology not only enhances communication but also fosters independence, dignity, and social inclusion. The heart of the episode revolves around technology's pivotal role in communication and remote support. Augmentative and alternative communication (AAC) devices are explored as essential tools for individuals who cannot speak, providing them with a voice to express their needs and emotions. Remote support technologies, ranging from sensors to smart home systems, are examined for their ability to promote independence while ensuring safety and personalized care. The hosts stress the transformative impact of these technologies on both individuals and caregivers, enabling more efficient resource allocation and enhancing responsiveness. Join Tony and Paul as they navigate the intersection of technology and empowerment in the lives of individuals with developmental disabilities, leaving listeners inspired by the possibilities for positive change. F
08:0304/05/2024
Transforming Care: Andrew Kelly on Integrating Technology in Health Services for Individuals with IDD

Transforming Care: Andrew Kelly on Integrating Technology in Health Services for Individuals with IDD

In this episode of IDD Health Matters, Dr. Craig Escude welcomes Andrew Kelly to discuss health services for individuals with intellectual and developmental disabilities (IDD). With a background in healthcare insurance and pharmacy management, Kelly shares his unintentional but impactful journey into the IDD field. Initially joining a pharmacy owned by a large agency, he moved through various roles that emphasized the importance of accessible and effective medication management for IDD individuals. His career progression led him to a technology-based company, where he currently focuses on improving documentation and operational efficiencies through electronic health records and other tech solutions. Kelly underscores the critical role of Direct Support Professionals (DSPs) in managing complex medication regimens and the enhancements brought by integrating technology to support these efforts. He discusses his current work with iCare Manager, an enterprise solution providing comprehensive electronic documentation to improve health outcomes and operational management within IDD services. Highlighting the importance of accurate and thorough documentation, Kelly illustrates how such practices are essential not just for compliance but for enhancing the quality of care and supporting better health outcomes for individuals with IDD. The episode touches on the satisfaction derived from making a meaningful difference in the lives of others, a recurring theme in careers within the IDD care sector.          
18:2029/04/2024
Empowering the Disability Community Through Film: Insights from Film Toledo

Empowering the Disability Community Through Film: Insights from Film Toledo

In this episode of "Disability Support And Parenting with Sarah Davies," Sarah engages with Charles and Michael from Film Toledo, an organization dedicated to fostering the local film community. Both guests share their journey in the film industry, starting from independent filmmaking to creating a collaborative network that supports diverse film projects and local talents. The conversation also highlights their roles in Film Toledo, with Charles as the executive director and Michael as the networking coordinator. They discuss the challenges and triumphs of running the organization, the importance of networking, and their efforts to boost the local economy by providing more job opportunities in the film sector. The episode delves into the specifics of Film Toledo's initiatives, including community events and partnerships that aim to enrich the local film scene. It also touches on their involvement in community projects, like the community film festival, which collaborates with local film professionals to help individuals from the disability community bring their creative visions to life. This inclusive approach not only improves the quality of local cinema but also empowers people with disabilities by providing a platform for their voices and stories. Additionally, the discussion covers the broader impact of their work on personal growth and community development, emphasizing the power of film as a tool for advocacy, education, and social connection. This engaging dialogue underscores the transformative potential of inclusive community efforts and the significant role of arts and culture in fostering understanding and cohesion in diverse communities. 
33:4229/04/2024
Ep 184: Exploring the Evolution of Disability Care and Rights in the U.S.

Ep 184: Exploring the Evolution of Disability Care and Rights in the U.S.

Join hosts Tony and Paul on the Friends for Life Podcast, where they delve into the vibrant lives and pressing issues facing individuals with developmental disabilities. This episode not only entertains but also educates listeners on the significant history and evolution of disability care in the United States. The discussion traces the journey from early informal family care through the dark period of the Eugenics movement, to the transformative post-World War II era, and the civil rights activism of the 1960s and 70s. The narrative continues through the legislative advancements that shaped today’s disability care, highlighting the Rehabilitation Act of 1973 and the landmark Americans with Disabilities Act of 1990. Today’s approach to disability care in the U.S. emphasizes principles of inclusion, accessibility, and equal opportunity, showcasing a significant transformation from past practices. Whether you're a professional in the field, someone looking for services, or just interested in learning more about the historical context of disability rights, this episode offers comprehensive insights and a reflection on how far we have come in recognizing and respecting the dignity and rights of people with disabilities. Tune in to be informed and inspired.
07:1427/04/2024
Integrative Healthcare Approaches for Intellectual and Developmental Disabilities: Expert Insights from Dr. Jennifer Lecomte and Dr. Wendy Aita

Integrative Healthcare Approaches for Intellectual and Developmental Disabilities: Expert Insights from Dr. Jennifer Lecomte and Dr. Wendy Aita

In this enlightening episode of IDD Health Matters, Dr. Craig Escude engages with two specialists, Dr. Jennifer Lecomte and Dr. Wendy Aita, who are making significant strides in healthcare for individuals with intellectual and developmental disabilities. The discussion centers on their innovative practice in Southern New Jersey, which uniquely integrates primary medical care with behavioral health services. Key Discussion Points: Interdisciplinary Care: Dr. Jennifer Lecomte, a med-peds physician, outlines her practice's approach to providing comprehensive care for patients with both intellectual disabilities and mental health conditions. This includes embedded behavioral health within the primary care setting to ensure holistic management of patients. Behavioral Health Integration: Dr. Wendy Aita, a clinical psychologist and co-director of the Risen Center, discusses the integration of behavioral health into primary care. She explains the "three touches" model: primary care assessment, social work intervention, and psychological evaluation, which collectively address both the physical and mental health needs of their patients. Specialized Facilities and Services: The practice is noted for its thoughtful design, featuring amenities like ceiling lifts and wheelchair scales in every suite, underscoring their commitment to accessibility and preventive care. They also focus on sensitive areas such as reproductive health and screenings, often overlooked in this population. Challenges and Innovations: The conversation also covers the specific challenges faced by individuals with dual diagnoses of intellectual disability and mental health issues. The guests emphasize the importance of understanding and dismantling the barriers to care, including caregiver support and the need for trauma-informed approaches. Outreach and Education: Dr. Lecomte and Dr. Aita share insights into their efforts to spread their integrative care model through partnerships and educational initiatives aimed at improving care accessibility and quality for this underserved population. Impact and Vision: The episode not only sheds light on the specialized needs of people with intellectual and developmental disabilities but also provides a model of care that prioritizes inclusivity, accessibility, and comprehensive management. Drs. Lecomte and Aita express a hopeful vision for the future of healthcare in this field, aiming to expand their integrative approach to more communities. Conclusion: IDD Health Matters continues to be a pivotal platform for discussing advanced healthcare strategies and advocating for enhanced health equity among the intellectually and developmentally disabled population, with this episode further enriching the conversation.
30:1422/04/2024
Ep 183: Exploring the Impact of the Americans with Disabilities Act: A Deep Dive

Ep 183: Exploring the Impact of the Americans with Disabilities Act: A Deep Dive

In this episode of the Friends for Life Podcast, we delve into the profound impact of the Americans with Disabilities Act of 1990 (ADA), a pivotal piece of civil rights legislation in the United States. Designed to eliminate discrimination against individuals with disabilities, the ADA spans several critical areas including employment, public accommodations, government services, telecommunications, and transportation. We explore how the ADA has transformed societal views and infrastructures, from increasing employment opportunities to enhancing physical access through innovative assistive technologies like wheelchair ramps and Braille signage. This legislation not only safeguarded rights but also heralded a new era of inclusion and equality, ensuring that people with disabilities enjoy the same freedoms and opportunities as everyone else. Join us as we discuss the ADA's ongoing legacy of fostering a more inclusive society, where diversity is not just acknowledged but celebrated.
07:3720/04/2024
Empowering IDD Advocacy: Lisa Burck on Supported Decision-Making and Disability Services

Empowering IDD Advocacy: Lisa Burck on Supported Decision-Making and Disability Services

In this enlightening episode of IDD Health Matters, host Dr. Craig Escude is joined by Lisa Burck from The Arc of Mississippi. With decades of experience in the field of intellectual and developmental disabilities (IDD), Lisa shares her profound insights into the dynamic and responsive nature of advocacy work. The conversation delves into the multifaceted roles that The Arc plays in Mississippi, from handling abuse investigations and training direct support professionals, to innovative programs like their Archangel Christmas initiative and addiction programs tailored for community integration challenges. Lisa highlights the transformative power of supported decision-making—a dignified alternative to guardianship that honors individual needs and preferences. The episode also explores the critical importance of direct support professionals and the severe impact of staffing shortages on employment opportunities for individuals with disabilities, a crucial aspect of life that fosters purpose and integration. Join Dr. Escude and Lisa as they discuss the practical challenges, emotional rewards, and the ongoing journey towards better health equity and quality of life for people with IDD. This episode is a must-listen for anyone involved in or caring about the disability support sector.            
21:1715/04/2024
Ep 182: Empowering Lives: Navigating Challenges and Celebrating Achievements in Developmental Disabilities

Ep 182: Empowering Lives: Navigating Challenges and Celebrating Achievements in Developmental Disabilities

Join hosts Tony and Paul on the "Friends for Life Podcast," a dynamic and engaging series dedicated to exploring the lives, challenges, and triumphs of individuals with developmental disabilities. Each episode delves into meaningful discussions aimed at sparking positive change within the field, featuring a mix of expert interviews, insightful stories, and in-depth analysis of relevant issues. Whether highlighting innovative care solutions from companies like Assured Health Services, showcasing inspiring guests like Scott DeFel, or exploring effective advocacy with veterans like Mr. John Dickerson, this podcast offers a comprehensive look into the intersection of healthcare, advocacy, and personal empowerment. Listeners will also find practical advice on navigating and improving care systems, all while the hosts maintain a light-hearted and enjoyable atmosphere. The Friends for Life Podcast is not just a source of information but also a community platform that celebrates achievements and addresses critical needs within the developmental disabilities field. It's an essential listen for caregivers, family members, professionals, and anyone interested in making a difference in the lives of people with developmental disabilities.
17:1113/04/2024
Empowering DSPs: Insights from NADSP's Joe MacBeth

Empowering DSPs: Insights from NADSP's Joe MacBeth

In this insightful episode of the IDD Health Matters Podcast, host Dr. Craig Escude welcomes Joe MacBeth, President and CEO of the National Alliance for Direct Support Professionals (NADSP), to discuss the crucial role and challenges of direct support professionals (DSPs) in supporting individuals with intellectual and developmental disabilities. Joe shares the origins and mission of the NADSP, founded in the mid-1990s with an influential push from John F. Kennedy Jr., focusing on advocating for the direct support workforce amidst ongoing workforce issues. The conversation delves into the persistent systemic failures to adequately address workforce challenges, highlighting the transition of the NADSP from its humble beginnings to its current state of moderate success and growth. Joe also reflects on the pivotal role of DSPs during the COVID-19 pandemic, their adaptability in the face of unprecedented challenges, and the critical importance of recognizing and compensating DSPs fairly for their multifaceted contributions to health, wellness, and quality of life for those they support. Dr. Escude and Joe explore the transformative potential of training and professional development for DSPs, emphasizing the NADSP’s eBadge Academy which focuses on enhancing skills, knowledge, and values to improve quality support for individuals with disabilities. Additionally, Joe shares his personal journey from starting as a DSP to leading a national organization, underscoring the profound learning and growth opportunities in the field. This episode not only highlights the invaluable work of DSPs but also calls for greater recognition, support, and investment in the direct support profession as a career path filled with growth, learning, and the chance to make a significant impact in the lives of individuals with disabilities.
29:0808/04/2024
Ep 181: Empowering Lives: Innovations and Insights in Developmental Disabilities

Ep 181: Empowering Lives: Innovations and Insights in Developmental Disabilities

In this captivating episode of the Friends for Life Podcast, hosts Tony and Paul delve into their ongoing commitment to positively impacting the lives of individuals with developmental disabilities. The episode starts with an enthusiastic introduction to the core mission of the podcast: sparking change in the field, ensuring individuals achieve their personal goals, and engaging in meaningful conversations that lead to actionable solutions. The excitement builds as the hosts reveal the newly constructed Friends for Life podcast studio. Tony and Paul share the story of building the studio from the ground up, emphasizing the intimate, well-lit space designed to enhance the podcast experience. They express their pride in the studio's new setup and hint at their plans to innovate the podcast's format with solo episodes, teaching segments, and enriching interviews. Tony explains the reasoning behind the new studio, focusing on the philosophy of embracing discomfort to promote growth. He outlines their vision for a format that is not only accessible to newcomers but also provides educational value to listeners unfamiliar with the developmental disabilities field. The conversation takes a personal turn as they recount the blood, sweat, and tears shed during the studio's construction, demonstrating their unwavering commitment to the project. Accessibility is a key theme, with Paul and Tony emphasizing the studio's design to be welcoming for all. They discuss their ambition to create a community space beyond the podcast, reflecting on their community involvement, including a film festival, as evidence of their commitment to using their unique skills for the greater good. The discussion shifts towards the upcoming eclipse and its potential effects on the community, highlighting the importance of adaptability and offering solutions rather than just discussing problems. They stress the need for resolution-focused dialogues in addressing the challenges faced by those in the developmental disabilities field. As the episode concludes, Tony and Paul contemplate the future of the Friends for Life Podcast and their broader mission. They share insights from their business experiences, the significance of consistency over talent, and personal growth stories. This episode not only reaffirms their dedication to making a positive impact in the developmental disabilities field but also offers listeners a blend of informative content, personal stories, and visions for the future of the Friends for Life Podcast.            
45:5706/04/2024
Overcoming Barriers: Kirsten Sanchirico's Journey in Disability Advocacy and Education

Overcoming Barriers: Kirsten Sanchirico's Journey in Disability Advocacy and Education

In this insightful episode of the IDD Health Matters Podcast, Dr. Craig Escude welcomes Kirsten Sanchirico, a graduate of the University of Vermont's LEND (Leadership Education in Neurodevelopmental Disabilities) program. Kirsten shares her unique experiences navigating the intersection of disability, policy, and education, particularly highlighting the challenges she faced attending the Disability Policy Seminar in Washington D.C. due to her physical disability and the accommodations required for travel. Kirsten's story sheds light on the broader issues of accessibility and inclusivity, from the difficulties of securing appropriate accommodations on flights to the financial implications of receiving a stipend while on a fixed income due to disability benefits. Her journey underscores the importance of understanding and advocating for the rights and needs of individuals with disabilities, both in educational settings and beyond. This episode is a powerful reminder of the ongoing struggles for equity and access faced by people with disabilities and the critical role of education and advocacy in driving positive change in policy and practice.
22:5101/04/2024
Ep 180: Empowering Voices: Advocacy and Inclusion in Developmental Disabilities

Ep 180: Empowering Voices: Advocacy and Inclusion in Developmental Disabilities

In this engaging episode of the Friends for Life Podcast, hosts Tony and Paul delve into the vibrant world of advocacy, education, and empowerment for individuals with developmental disabilities. They are joined by special guests who share their personal journeys, insights into the importance of self-determination, and the impact of community involvement in promoting inclusivity and support for people with disabilities. The conversation highlights the transformative power of advocacy groups like OSDA (Ohio Self-Determination Association) and the significance of initiatives like Project STIR (Steps Toward Independence and Responsibility), emphasizing the role of education and community support in enhancing the lives of individuals with developmental disabilities. This episode is a testament to the collective effort required to foster a more inclusive society and the belief that everyone has a vital role to play in advocacy, with no one left on the bench.
23:3830/03/2024
Advancing IDD Healthcare: Insights from Nursing Leaders Dina Pizzurro-Smith & Daleigh Tallent

Advancing IDD Healthcare: Insights from Nursing Leaders Dina Pizzurro-Smith & Daleigh Tallent

In this enlightening episode of IDD Health Matters, Dr. Craig Escude is joined by Dina Pizzurro-Smith, BSN, RN, CDDN, Director of Client Services at IntellectAbility, and Daleigh Tallent, MSN, RN, CDDN, Clinical Quality Coordinator at IntellectAbility. Both guests share their unique journeys into the field of nursing for individuals with intellectual and developmental disabilities (IDD), highlighting the challenges and rewards that come with serving this underserved population. Dina and Daleigh discuss the critical need for specialized training and education for nurses in the IDD field, emphasizing the lack of IDD-specific content in traditional nursing curricula. They explore the importance of understanding the complex healthcare needs of individuals with IDD and the role of nurses in providing tailored care and advocacy to ensure these needs are met. The conversation also covers the challenges individuals with IDD face in accessing healthcare, including physical barriers and the reluctance of some healthcare providers to treat patients with IDD. Dina and Daleigh stress the importance of building relationships with community healthcare providers and the need for comprehensive training that includes clinical skills, disability competency, and advocacy. This episode is a must-listen for healthcare professionals, nursing students, and anyone interested in improving health equity for people with intellectual and developmental disabilities. Through their stories and insights, Dina and Daleigh inspire listeners to advocate for better training, awareness, and inclusion in healthcare for the IDD community.
19:4625/03/2024
Ep 179: Empowering Independence: Innovative Solutions for Individuals with Developmental Disabilities

Ep 179: Empowering Independence: Innovative Solutions for Individuals with Developmental Disabilities

In this engaging episode of the Friends for Life Podcast, hosts Tony and Paul dive into the vibrant lives and pressing issues facing individuals with developmental disabilities. They aim to spark positive change in the field while ensuring that these individuals achieve their personal goals, all while having a great time. The episode features insightful conversations with guests Dustin and Jordan, who run an art studio in Highland County, Ohio, where adults with disabilities create a wide array of artworks, from woodworking to canvas paintings. They discuss the studio's unique approach to empowering artists with disabilities by bringing their creations to life and selling them at festivals and sales. Additionally, the episode explores the work of RHDD (Residential Home for the Developmentally Disabled), which has been providing a variety of services to support independent living in the community for over 47 years. From housing and job assistance to transportation and adaptive equipment, RHDD's comprehensive approach aims to meet all the needs of individuals with developmental disabilities. The podcast also delves into the importance of technology in enhancing the lives of people with disabilities. It highlights how technology can be used not just for basic needs but also for expanding one's support network and living more independently. The discussion covers the use of technology for everyday tasks, such as online banking and grocery shopping, and how it can be personalized to suit individual needs and preferences. This episode of the Friends for Life Podcast is a must-listen for anyone interested in the field of developmental disabilities, offering a blend of inspiring stories, innovative solutions, and a deep commitment to improving the lives of individuals with disabilities.
15:1823/03/2024
Transforming Lives Through Intellectual Disability Nursing: Insights from Dr. Owen Doody

Transforming Lives Through Intellectual Disability Nursing: Insights from Dr. Owen Doody

In this enlightening episode of IDD Health Matters, host Dr. Craig Escude sits down with Dr. Owen Doody, an Associate Professor at the University of Limerick and a registered Intellectual Disability Nurse. Dr. Doody shares his extensive experience and passion for intellectual disability nursing, a field he has been dedicated to since qualifying in 1997. With a career spanning over three decades, Dr. Doody has made significant contributions to nursing management, education, and research, focusing on the well-being of individuals with intellectual disabilities and their families. Recorded at the Developmental Disabilities Nurses Association annual conference in New Orleans, Louisiana, Dr. Doody delves into the keynote address he delivered on the value and contribution of intellectual disability nursing in Ireland. He discusses his personal journey into the field, driven by a lifelong interest in caring for people and making meaningful changes in their lives. Dr. Doody emphasizes the satisfaction derived from enabling individuals with intellectual disabilities to achieve small but impactful strides towards independence and a better quality of life. The conversation also covers the challenges and opportunities in health equity and access for people with intellectual and developmental disabilities. Dr. Doody highlights the importance of specialized training for nurses in this field, the role of health passports in improving healthcare visits, and the need for systemic adjustments to better accommodate individuals with disabilities. Listeners will gain insights into the critical role of intellectual disability nursing in supporting community living, the significance of research in advancing the field, and the profound fulfillment that comes from working closely with individuals with disabilities and their families. Tune in to discover how Dr. Owen Doody's work is shaping the future of intellectual disability nursing and making a difference in the lives of many.
19:0118/03/2024
Ep 178: Transforming Care for Developmental Disabilities: Insights and Innovations

Ep 178: Transforming Care for Developmental Disabilities: Insights and Innovations

In this enlightening episode of the Friends for Life Podcast, hosts Tony and Paul delve into the rich history and evolving landscape of care for individuals with developmental disabilities. With a focus on sparking positive change and having fun along the way, this episode features a deep dive into the personal journeys of those who have dedicated their lives to this field. From the early days of institutional care to the modern push towards more inclusive and supportive services, our guests share their experiences and insights. Learn about the origins and growth of Assured Health Services, a beacon of hope for those seeking residential care and ADS services. Discover how Assured Health stands out in helping individuals achieve their personal goals, emphasizing the importance of success for everyone involved. The episode takes us back to 1969, where one of our guests began their career in public service, marking the start of a lifelong commitment to improving the lives of those with intellectual disabilities. We explore the transition from institutional settings to more personalized care approaches, highlighting the significant milestones and challenges along the way. Hear from Dr. Craig ESC, president of IntellectAbility, on how state developmental disability agencies, managed care organizations, and providers across the United States are using innovative tools to improve health equity for people with intellectual disabilities. Additionally, we're introduced to the personal stories of individuals who found their calling in this field, often influenced by family connections and a desire to make a meaningful difference. From architectural backgrounds to fine arts degrees, our guests share how their unique paths led them to contribute to the developmental disabilities care sector in unexpected and rewarding ways. This episode is not just a look back at where we've come from but also a hopeful gaze into the future of care and support for individuals with developmental disabilities. Join Tony, Paul, and their guests on a journey of discovery, compassion, and dedication on the Friends for Life Podcast.
13:2016/03/2024
Navigating Health and Housing for Individuals with Disabilities with Patricia Calandra

Navigating Health and Housing for Individuals with Disabilities with Patricia Calandra

In this episode of IDD Health Matters, Dr. Craig Escude welcomes Patricia Calandra, a passionate advocate for individuals with intellectual and developmental disabilities. Broadcasting from the New York Alliance for Inclusion and Innovation conference, they delve into Patricia's personal journey as a parent of two adult children with autism, her role as a self-direction broker, and her innovative work as a Master Housing Navigator. Patricia shares her family's experiences navigating the complexities of self-direction and residential living, highlighting the challenges and triumphs of seeking independence and appropriate support for her children. She emphasizes the importance of personalized care, the transformative power of technology in enhancing independence, and the critical role of telehealth services, especially during the COVID-19 pandemic. The conversation also explores the concept of non-certified housing, offering individuals with disabilities more autonomy over where and how they live. Patricia's insights into the need for better compensation for support workers, the exhaustion families face from constant advocacy, and the potential for technology to reduce reliance on human services are thought-provoking. This episode is a must-listen for anyone interested in the intersection of health, wellness, and disability advocacy, offering valuable perspectives on improving the lives of individuals with intellectual and developmental disabilities.
19:1311/03/2024
Ep 177: Empowering Independence with Remote Supports: Jason Schaffer PhD of Life Bridge Remote Supports

Ep 177: Empowering Independence with Remote Supports: Jason Schaffer PhD of Life Bridge Remote Supports

In this episode of the Friends for Life Podcast, hosts Tony and Paul welcome Jason Schaffer, PhD, from Life Bridge Remote Supports, to dive deep into the transformative world of remote supports for individuals with developmental disabilities. Jason shares his journey from skepticism to advocacy for remote supports and assistive technologies, highlighting how these innovations not only cut costs but significantly enhance the quality of care and independence for individuals served. Life Bridge Remote Supports, under Jason's leadership, emerged from recognizing the inevitable shift towards integrating technology in care. Initially hesitant, Jason's perspective changed after understanding the broader implications and benefits of remote supports, leading him to secure a grant and mentorship to explore this field further. His experience with Brian Hart from LADD in Cincinnati was a turning point, offering him insights into the complexities and potential of remote supports. Jason discusses the challenges and opportunities in convincing agency providers about the financial and operational benefits of adopting remote supports. He emphasizes the importance of viewing remote supports not just as a cost-saving measure but as a strategic business decision that can improve service quality and outcomes for individuals. One of the most compelling parts of the conversation revolves around real-life success stories. Jason shares anecdotes of individuals who thrived under remote supports, including a person who transitioned from 2-to-1 staffing to minimal drop-in services, highlighting the profound impact on independence and self-sufficiency. These stories underscore the potential of remote supports to transform lives by promoting independence, reducing reliance on physical staffing, and fostering stronger relationships between caregivers and individuals. The podcast episode is a call to action for providers, caregivers, and stakeholders in the developmental disabilities field to embrace remote supports and assistive technologies. By sharing his insights and experiences, Jason Schaffer invites listeners to reconsider traditional care models and explore the vast potential of technology to enhance the lives of individuals with developmental disabilities. Listeners interested in learning more about Life Bridge Remote Supports and how they can leverage these technologies can visit LifeBridge Remote for more information.
28:4009/03/2024
David Ervin's Vision for Health Equity and Accessible Services

David Ervin's Vision for Health Equity and Accessible Services

In this enlightening episode of IDD Health Matters, host Dr. Craig Escude welcomes David Ervin, a seasoned expert in the field of supports and services for individuals with intellectual and developmental disabilities (IDD). With a career sparked by a pragmatic need that turned into a lifelong passion, Ervin shares his journey from a direct support professional to becoming the CEO of a community-based organization in Rockville, Maryland, named Mome. This episode delves into the critical importance of health equity, wellness, and the development of health care systems tailored to the unique needs of the IDD community. David Ervin discusses the challenges and triumphs of creating multidisciplinary clinics and healthcare collaboratives aimed at providing culturally competent and accessible care to individuals with IDD. He emphasizes the transformative impact of such specialized care on the quality of life and health outcomes for this population. The conversation also explores the potential of Medicaid Managed Care models to revolutionize care by integrating acute medical services, long-term supports, and a holistic approach to wellness. Listeners will be inspired by Ervin's vision for a future where health care systems are inclusive, equitable, and capable of meeting the diverse needs of all individuals, especially those with IDD. This episode is a must-listen for anyone interested in health equity, the power of community-based solutions, and the ongoing efforts to ensure that individuals with IDD can access the high-quality care they deserve. Tune in to IDD Health Matters for a deep dive into how health, wellness, and equity intersect in the lives of people with intellectual and developmental disabilities, featuring insights from one of the field's most passionate advocates, David Ervin.        
30:3604/03/2024
Ep 176: Empowering Voices: Insights and Advocacy from the Synergy Conference

Ep 176: Empowering Voices: Insights and Advocacy from the Synergy Conference

In this episode of the Friends for Life Podcast, Tony and Paul provide a comprehensive recap of the Synergy Conference, highlighting the vibrant discussions, personal stories, and educational sessions that took place. The episode features engaging interviews with conference attendees who share their experiences, insights, and the impact of the conference on their lives and work in the field of developmental disabilities. The podcast kicks off with an introduction to Assured Health Services, emphasizing their commitment to helping individuals with developmental disabilities achieve their goals. The hosts then dive into conversations with Mel and Shavah, who discuss the significance of addressing racism within the context of developmental disabilities and share personal experiences of cultural integration and advocacy. Listeners are treated to a variety of perspectives, including insights from Kim and Dennis from Wood County, who talk about their involvement in People First and Action Club, advocating for the rights and voices of people with disabilities. They highlight the importance of community service and personal advocacy, sharing how these activities enrich their lives and the lives of others. The episode also features Michael and Melissa, who discuss their favorite parts of the Synergy Conference, including sessions on mental health and safety on the internet. They share their experiences with Special Olympics and Action Club, emphasizing the importance of community involvement and support. Throughout the episode, the hosts and their guests underscore the value of the Synergy Conference as a platform for learning, sharing, and fostering a sense of community among individuals with developmental disabilities, their caregivers, and professionals in the field. The discussions reveal a shared commitment to advocacy, personal growth, and the pursuit of independence and fulfillment. This episode of the Friends for Life Podcast not only recaps the highlights of the Synergy Conference but also celebrates the stories, challenges, and achievements of individuals with developmental disabilities, offering listeners inspiration and insight into the power of community and advocacy. #podcast #idd
31:0502/03/2024
Transforming Perceptions: Rick Guidotti on Celebrating Diversity in IDD Health Matters Podcast

Transforming Perceptions: Rick Guidotti on Celebrating Diversity in IDD Health Matters Podcast

In this enlightening episode of IDD Health Matters, host Dr. Craig Escude engages in a captivating conversation with Rick Guidotti, a former fashion photographer turned advocate for changing perceptions of beauty. Guidotti, the founder of Positive Exposure, shares his journey from capturing the glitz and glamour of the fashion world to spotlighting the unique beauty of individuals with intellectual and developmental disabilities (IDD). Positive Exposure, a nonprofit organization, leverages photography, film, and educational programs to foster a more inclusive society by celebrating human diversity and challenging the stigmas associated with IDD. Guidotti recounts his pivotal moment of inspiration upon encountering a young girl with albinism, a condition rarely represented in conventional beauty standards. This encounter propelled him to research albinism, only to find dehumanizing representations in medical textbooks. Motivated by this discovery, Guidotti embarked on a mission to transform public and medical perceptions through Positive Exposure. The organization collaborates with medical schools and advocacy groups worldwide, providing an alternative narrative that emphasizes the humanity and individuality of people with various conditions. The episode delves into Positive Exposure's innovative projects, including "Frame," a series of films that present medical conditions through the personal stories of those who live with them, and "Textbook Beauty," a forthcoming platform aimed at redefining medical education imagery. Guidotti's work extends beyond photography to include collaborations with artists and performers with IDD, further amplifying their voices and stories. Guidotti's message is clear: the beauty of diversity must be recognized and celebrated. His call to action—seeing, hearing, and belonging—resonates as a universal need, underscoring the importance of inclusivity and acceptance in building a more compassionate world. This episode not only highlights the transformative power of Positive Exposure but also serves as a reminder of the shared humanity that unites us all.   
12:4526/02/2024
Ep 175: Friends for Life Moves to New Studio & Launches Innovative Programs for Developmental Disabilities

Ep 175: Friends for Life Moves to New Studio & Launches Innovative Programs for Developmental Disabilities

In this episode of the Friends for Life Podcast, hosts Tony and Paul delve into the exciting developments and changes happening with their podcast and the broader mission of Friends for Life. They kick off the conversation by discussing the move to a new studio and office, highlighting the growth and expansion of Friends for Life. This move is not just a physical transition but also marks a significant step forward in their commitment to supporting individuals with developmental disabilities. Tony and Paul share their enthusiasm for introducing new programs that aim to enhance the lives of the people they serve. They touch on the addition of Adult Day Support (ADS) and vocational services, areas they've been cautious about venturing into previously. Tony, with his extensive experience in residential care, transportation, and vocational skills, expresses a renewed perspective on expanding their services to meet the growing needs of their community. The conversation shifts to the challenges and rewards of running a business in the developmental disabilities field. They candidly discuss the realities of managing staff, the importance of documentation and communication, and the personal growth that comes from navigating the complexities of their work. Listeners are given a behind-the-scenes look at the thought process behind the podcast's new direction, including the redesign of the studio and the goal of making the podcast more engaging and educational. Tony and Paul emphasize their desire to create content that not only entertains but also educates and inspires their audience. The episode also touches on broader themes of personal and professional development, the value of perseverance, and the impact of positive leadership. They encourage listeners to embrace challenges, learn from their experiences, and contribute positively to their communities. As the Friends for Life Podcast embarks on this new chapter, Tony and Paul invite their audience to join them in this journey of growth, learning, and making a difference in the lives of individuals with developmental disabilities.
38:5524/02/2024
Advancing Alzheimer's Treatment in IDD: Breakthroughs and Hope with Dr. Seth Keller

Advancing Alzheimer's Treatment in IDD: Breakthroughs and Hope with Dr. Seth Keller

In this episode of IDD Health Matters, Dr. Craig Escude welcomes back Dr. Seth Keller for a deep dive into the latest advancements in the treatment and understanding of dementia, particularly in individuals with intellectual and developmental disabilities. Dr. Keller, a seasoned expert in neurology with a focus on Alzheimer's disease, shares groundbreaking insights into the diagnosis and management of dementia, emphasizing the significant strides made in research over the past few years. The conversation begins with an overview of the challenges faced in diagnosing Alzheimer's disease, highlighting the shift towards more accurate diagnostic methods through biomarkers. Dr. Keller discusses the development of blood tests and imaging techniques that can now confirm the presence of Alzheimer's disease with much greater certainty than before. This advancement is particularly crucial for individuals with Down syndrome, who are at a higher risk of developing Alzheimer's at an earlier age due to genetic factors. Dr. Keller then delves into the latest treatments aimed at combating Alzheimer's, including the promising field of anti-amyloid therapy. These therapies, which are still in the research phase for broader application, focus on removing or reducing amyloid plaques in the brain, a hallmark of Alzheimer's disease. He shares the complexities and challenges of ensuring these treatments are safe and effective for people with intellectual and developmental disabilities, stressing the need for inclusive research that addresses the unique needs of this population. The episode also touches on the importance of health equity and access to cutting-edge treatments and research for people with intellectual and developmental disabilities. Dr. Keller calls for a unified effort among advocacy groups, researchers, and healthcare providers to ensure that advancements in Alzheimer's treatment are accessible to all, regardless of their developmental status. In a broader context, the discussion emphasizes the critical role of early diagnosis and intervention, the potential impact of new treatments on quality of life, and the ongoing efforts to include people with developmental disabilities in Alzheimer's research. Dr. Keller offers hope and optimism for the future, highlighting the collaborative efforts underway to improve the lives of those affected by dementia. As the episode concludes, Dr. Escude and Dr. Keller reflect on the importance of continued advocacy, research, and education to advance the understanding and treatment of dementia in the IDD community. They underscore the need for a comprehensive approach that combines medical, social, and preventive strategies to address the challenges faced by individuals with intellectual and developmental disabilities and dementia.
21:3619/02/2024
Ep 174: Empowering Change in Developmental Disabilities: Michele Myerholtz

Ep 174: Empowering Change in Developmental Disabilities: Michele Myerholtz

The Friends for Life Podcast, hosted by Tony and Paul, delves into the lives and challenges faced by individuals with developmental disabilities, aiming to foster positive change in the field while engaging in meaningful discussions. In this episode, they welcome Michele Myerholtz, who shares her journey within the developmental disabilities (DD) field, starting from her high school volunteering experiences to her professional growth and current role. Myerholtz discusses the importance of community involvement, the evolution of the DD field, and the significance of mutual trust, respect, and kindness in both personal and professional settings. The conversation also touches on the challenges and learning opportunities faced by service and support administrators (SSAs) and the broader DD community, emphasizing the continuous effort towards improvement and acceptance. This episode offers insights into the complexities of the DD field, the impact of supportive relationships, and the ongoing efforts to enhance the quality of life for individuals with developmental disabilities. 
48:5617/02/2024